Welcome @neffy I am so glad you have found us.
Yes, keep going the waiting and the unknown are the worst times for anxiety.
If you were only discharged on Wed 22nd you must feel overwhelmed and exhausted even if you had the most wonderful Christmas with your 2 children, real quality time.
We are here for you I often find we understand each other as sometimes others cannot.
If you would like to talk the Blood Cancer UK support line is there for you.
I look forward to hearing more from you.
Be kind to yourself
Hello and welcome @neffy. I do hope you managed to have a lovely Christmas despite all your worries? Please do contact the Support Services team if you need to talk Blood cancer information and support by phone and email | Blood Cancer UK. Take care Gemma
Thank you. It did hit my like a wall on this Wednesday just gone. I have many more memories to make toll February now which I just have to focus on. Hope you all have a lovely new year best you can xxx
Hi Neffy
You fill me with admiration, coping with two children and your blood cancer. My two children are grown up and coping with me and my blood cancer. This is a wonderful forum to share both your woes and your joys, somehow it does help to know that you are not alone in your health hassles. I too get very down and despairing at times but then I start tapping on my iPad and get such supportive responses that lift my spirits. Keep talking to us. Marylin
@neffy memories are priceless and something that can never be taken away.
@Marylin our forum knows things about me nobody else does, it is also priceless.
Thank you @BloodCancerUK-SupportTeam for your kind message. Thankfully my son has now recovered from Covid. Shout-out to Asda who had some last-minute online delivery slots available in Christmas week, so we were able to send him some festive supplies. This helped me to feel somewhat better about it and he sent me a lovely photo of what he had cooked for his Christmas lunch.
We were very happy and grateful to be able to be able to see our other two sons. One thing about having Myeloma is that I appreciate so many situations/things that I would have taken for granted before. Last year we handed a Christmas dinner through the window to just one of our boys (the most local one) who sat outside in the rain under a gazebo so this Christmas for us was definitely better than that. I donāt like the situations we have to put our loved ones through. I think maybe they appreciate things differently now too.
Oh @Coastgirl yes, Covid times has helped me appreciate so many situations and things that I would have taken for granted before too and I also donāt like situations I put others through either and I hope that others might appreciate things differently now too.
Look after yourself and please keep posting
Iām glad you made some lovely memories over Christmas. I cherish these moments with my two girls as well. Thinking of you lots. I feel overwhelmed for you when I read your post so it must be tough for you. February will come around all to soon. Iām the meantime you look after yourself and let other look after you to X
Christmas Day happened on New Yearās Eve because my daughter had Covid badly and then my Son-in-law caught it and tested positive for nine days. It was lovely and my son and his family came too because they had all had Covid earlier. I was very touched as each one arriving hugged me and whispered āDonāt worry I have just taken a lateral flow test this morning!ā It feels like that is the way for people who love you to say āI love you!ā How things change!!
Oh @GrandmaJo I did laugh at the whisper in your ear, is a lateral flow test going to be the new Valentines gift and you can celebrate any occasion at any time.
Hi Steph @neffy how are you doing and how is the treatment going?
Hiya Alice, Iām just recovering from covid, it was mild like a cold and I got given a antibody drip. I have got my next bone marrow biopsy booked for next Wednesday. Hope you are well x
Hope you recovery goes well and the biopsy goes ok for next week.
Hi Neffy,
So glad to hear that you are recovering from Covid and that it was not severe. Thatās also heartening to hear that you were given the antibody treatment.
I hope all goes really well with your bone marrow biopsy next week.
How are you doing @Coastgirl ?
Hi @Nichola75,
Iām fine, thank you Thatās so kind of you to ask.
I am really hoping that Iāll be able to get my fourth dose/Covid booster at the end of this coming week when my 91 days (since the third dose) will be up. It seems that walk-in centres are the best option and hopefully it wonāt be a re-run of the third dose saga!
Like many others perhaps, Iām finding it a challenge spending yet more precious days of life (mostly) shielding. Who knows how things will go once Plan B is scrapped? Spring is coming and suddenly I feel ready for an adventure!
Mine was fine at a walk in centre so fingers crossed yours is to
Spring time and the sunshine immediately makes me feel better.
What kind of adventure are you thinking off?
Oh thatās good to hear. Do you happen to know if its OK to have a third type of jab? I had Oxford AZ for the first two, Pfizer for the Third Dose and it looks as if it could be Moderna/Pfizer on offer now at the nearest walk-in centre and Iām not sure if itās pot luck which one you are given. I might post this same question on the vaccine thread.
Adventure? Well, I think Iāve downgraded the meaning of the word, because pretty much anything would feel like an adventure ATM⦠but I would definitely love to visit some friends who have retired to the West Country and one day I would like to go walking somewhere where I can see puffins! What would you choose to do?
Hi @Coastgirl. Our webpage here explains - Research shows there are no safety concerns about mixing vaccines, so when you have your third dose and your booster, you can safely have vaccines that are different from your previous doses.
Hope that helps. Please do give us a shout on the support line if you want to talk anything through.
Hi @Coastgirl luckily @Alice_BloodCancerUK has answered your question.
Oooohh, there are so many places I would like to visit in the UK, but I think somewhere on the coast, the views, the tides, the sand, the smell of the sea and fish and chips and a yummy ice ream would do me.
I shall sit here and fantasise now.
I await others