Hello all, I am new here but I am 4 years into a blood cancer diagnosis. I am a Brit living in Switzerland diagnosed with Polycythaemia vera (PV). I have been on hydroxy for the past 3 years (1500mg per day) and now they have found via a bone marrow biopsy I have stage 1 fibrosis in the marrow so they want to switch me to Besremi Interferon. I have heard that this can be better longer term (as I was diagnosed at 45) BUT I have also heard it can have much worse side effects. Does anyone have experience with this and would share with me ? I would be very grateful. Thank you.
Hi @BritinSwitzerland I am so glad that you have found us living in Switzerland.
I also see you have found the other post on interferon and have reached out to @Rammie18, give them time to respond to you.
There might also be others that can help.
I will also copy your post to the Blood Cancer UK support services @BloodCancerUK
Please keep on posting as I am interested in hearing more about you.
Look after yourself and please let us know how you are doing.
@Erica much appreciated