I’m 49 yrs, work full time done US biopsy neck result Chronic lymphocytic leukaemia (CLL)/Small lymphocytic lymphoma (SLL). My first appointment to Hematology end of April no idea yet whats the plan or treatment for me very anxious.
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Hi @JJackie and welcome to the forum.
I’m sure everybody on here can relate to how you are feeling. That diagnosis hits like a ton of bricks and waiting for appointments just adds to that anxiety. I was 42 and a full time teacher when I was diagnosed with lymphoma and had a rollercoaster of emotions!
I’m sure you have so many questions about treatment, how this might impact your work and many more. The best bit of advice I can give now is to write down all of those questions ready for your appointment.
Have you shared your diagnosis with, family or friends? It’s so helpful if somebody can come to that appointments with you I found I was do overwhelmed and missed things or forget to ask my questions.
Please keep us updated on his you get on st your appointment. In the meantime, we are here to listen and support you.
Nichola X
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Hi @JJackie welcome to our forum and I am so glad that you have found us.
I am not surprised that you are feeling anxious.
You get the shock of a scary diagnosis and then are told that you have to wait to the end of April for more information and a plan. Yes, may of us know that one.
I think not knowing and waiting are horrible.
@Nichola75 has given you a great response so perhaps take this time as an opportunity to write down all your fears, questions and practicalities for your appointment,
In the meantime really look after and be kind to yourself and please do let us know how you get on.
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Thank you for your advised.
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Dear @JJackie,
Welcome to our forum. I am sorry to hear about your diagnosis of Chronic lymphocytic leukaemia (CLL)/Small lymphocytic lymphoma (SLL) and how you are feeling. It is completely understandable that you are anxious especially having to wait until next week for your appointment.
I have enclosed some information about Chronic lymphocytic leukaemia (CLL)/Small lymphocytic lymphoma (SLL) from our colleagues at Lymphoma Action which you might find helpful Lymphoma Action CLL/SLL information
Chronic lymphocytic leukaemia (CLL)/Small lymphocytic lymphoma (SLL) is slow-growing blood cancer and many people do not need treatment for many years but are monitored closely. Your haematology team will discuss your treatment and plan with you. This will depend on many factors including what stage you are and your symptoms.
I have also enclosed our information for people who are newly diagnosed with a blood cancer which you may find helpful Blood Cancer UK Just Diagnosed
If it would be helpful to talk this through in more detail @JJackie, please do not hesitate to give our nursing support line a call. The number is 0808 2080 888 - it’s open 10am to 4pm on Mondays, Wednesdays, Thursdays and Friday, 10am to 7pm on Tuesdays, and 10am to 1pm on Saturdays.
Please keep us posted and let us know how you are.
Kind regards
Fiona (support services nurse)
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