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I’m really glad I found this site. I’m in the process of being ruled out for3blood cancer. They found m spike proteins in my blood and hence Jones protein in my urine. I recently had a bone marrow biopsy and I’m waiting on the result. It’s all been stressful and I can relate to what I’ve been reading. It’s nice to realize my thoughts and feelings are normal and I’m not crazy . I get the results of my biopsy Thursday and I think that will calm things down as I will then know what I’m dealing with. Thankyou all for sharing so honestly. It has helped to ease the burden this has all cause.

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Hi @Kimawac ,

Welcome to our forum although I am sorry for the reasons that you needed to come here. It is a welcoming and safe space and I am glad you have found it helpful.

Waiting for results is so difficult and stressful and it is completely normal and understandable that you are feeling this way. We will be thinking of you tomorrow. Please let us know how you get on.

If it would be helpful to talk this through or you need further information or support, please do not hesitant to give us a call on our nursing support line on 0808 2080 888

Kind regards

Fiona (support services nurse)

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Hi @Kimawac you are certainly not mad. We all had the same experience when we were diagnosed and it came as a shock. I’d never of Myeloma until a doctor told me that I had it and then I had to negotiate all of the information I was being given without a real support network. In some ways I was relieved. I knew something was wrong and had been admitted to hospital twice and was struggling to advocate for myself and convince medical staff that I was really suffering. They thought I was just being lazy and refused to investigate. Once I was told what was wrong, I just wanted to get on with the treatment and work towards better days. I didn’t think of the prognosis only of what was in my power to do. I hope your experiences are better and that things settle down for you. keep in touch on the forum and let us know how you are getting on.

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