Is Polycythaemia Vera really rare?

@Duncan was hoping for a return to an absolute Monarchy like what the treason filled colony you live in has. At least then we could have a true rebellion like what you had and replace the head of state :wink:
Money will never fix the system, people will, like the NHS, people in it love to shop 24/7 but work weekends?
We are always a united country, we have our weather to unite us :slight_smile:
As for the stadium, have to try and sync our fatigue days and have a mass snooze session, big screen box set binge and ice cream under a mass duvet.

Hi, Duncan! Thank you for their welcome! Yes, there is obviously something deep inside us that makes us feel that we need to burrow ‘home’ when these big things happen in our lives, even when we haven’t actually lived there for a very long while. I still read the online UK newspapers each day and follow UK politics far more closely than those of any of the countries that I have lived in, as well as going back every Christmas, so I still feel very attached to the UK.

Finding the forum here has been wonderful and reading about other people’s experiences, especially since these blood cancers are so rare (although with enough of us to fill the cricket ground in Leicester, I understand from an expert on the matter!) is very helpful.

3 Likes

@JanetF @Duncan is only in the US because he is on the run for crimes against food, he enjoys tofu shuudddeerrr

2 Likes

But isn’t that a federal capital offence there?

2 Likes

@JanetF @Duncan is hiding in one of those liberal west coast states, pretending to eat fish and chips when it is just tofu and battered soya beans with poor spuds as the patsy :wink: not enough tarter sauce in the world to rescue that dish!

2 Likes

Oh, @clickinhistory, that sounds horrific! We must save @Duncan from that! As if having Polycythaemia vera (PV) isn’t bad enough, to be reduced to a diet of that nature is little short of horrendous! :grimacing: Is there nothing we can do to help? Food parcels? Special venesection arrangements in which blood goes out while liquidised fish and chips goes in? :yum:

2 Likes

@JanetF it gets worse, he shared photos of it on here without any warning or trigger awareness literature.
If he was not such a great overseas scientific reporter, he would walking on into Dante’s sixth circle, via some very nice hiking trails he knows no doubt :wink:

What? Without trigger warnings being plastered all over them? Is that even legal these days?

1 Like

Hi @clickinhistory and @JanetF in the supportive spirit of our forum I am not feeling very comfortable with this thread and talking about another valued forum member like this.
I am wondering what a new, or existing member, to our forum would feel about our forum, that I am so proud of, reading it and not realising that you both mean it as an ‘in joke’.

1 Like

Oh goodness, I have a busy weekend for a change and I log back in and you’re all being cheeky so-and-sos! Funnily enough I went for brunch and very nearly ordered the tofu fish and chips… You don’t know what you’re missing!

But I take @Erica’s point and perhaps these jokes might come across less supportively to others wanting to use the forum. Personally, I’ve heard it all since my teens about veganism so don’t take it too seriously :seedling::tropical_fish::fries:

1 Like

It was a very unconscious decision to join a British blood cancer forum for me, but then I did it in a kind of fog after diagnosis and am so glad I did when I realised I’d already opened up so much on here. I joined a US one too but find here I don’t need to change my language, like British colloquialisms, and can be myself more easily. Plus there’s dear @Erica!

Like you @JanetF I keep abreast of UK news and funnily enough have got some American friends onto the Guardian and other British/European sources. But of course, the world seems so much smaller these days with the ease of information and news moving around. I love being able to stay in touch with loved ones in time zones many hours away—I’m sure you know this from your UN work and living in such far-flung places!

Enjoy the forum @JanetF, I hope it comes to be as supportive for you as it is for me. Lucky us to have access to this great British information and support from our respective outposts, I say!

1 Like

Hi, @Erica! I understand what you are saying and would never intentionally offend or upset another member here (or anyone else anywhere else, for that matter!). I can see how it could come across that way, though, and I apologise for upsetting you and anyone else who was upset or offended by the exchange. Wishing you a good week ahead, Janet

2 Likes

Hi, @Duncan! I have just replied to @Erica’s message re the exchange about the tofu and chips and I’m glad that you weren’t offended by it. In retrospect, I do see that it wouldn’t read well for new members, but I had already seen several exchanges between you and @clickinhistory on the subject, so I knew we were on a well-trodden path!

What a coincidence that you almost chose the tofu fish and chips yesterday! I rarely eat out here these days (something which is set to change once I move back to Spain!), but when I used to, there was a pan-Asian restaurant here that did delicious tofu - it was probably their best dish. Wishing you a good week ahead!

2 Likes

Ha yes @clickinhistory seems particularly partial to reminding me of that one tofu meal! I could fill a whole exchange between us with photos of vegan foods I’ve eaten over the years but wouldn’t want to disgust him further :rofl:

How exciting to be moving to Spain, bet your tastebuds can’t wait @JanetF! I have such fond memories of my first holiday there with my now-husband showing off his fluent Spanish while we stuffed our faces full of delicious tidbits in various gorgeous plazas—making my own mouth water here just reminiscing! Think we’ll pop to the local Spanish restaurant soon for their happy hour tapas and sangría :drooling_face:

1 Like