Is Polycythaemia Vera really rare?

,

Oh no need for any apologies here @Marylin, you can probably tell I like to do my reading around what we live with and any patterns there may be. A close relative of mine sadly also has an Myeloproliferative neoplasms (MPN) so it would seem they might run in our family. My haematologists and phlebotomists say families are likely to encounter the same environmental carcinogens, perhaps why we find these health-related commonalities.

I know what you mean about horrible margarines, but I’m grateful to your family for making them as now they can be almost as tasty as butter! What a great claim to fame you have. Bet you’ve heard some fascinating tales from your Danish family.

It’s so heartening to hear you’re feeling a little better, long may that last and continue to improve. Those breathing classes sound great. Perhaps also look up slow flow yoga, which adapts the breathing and movement of yoga to slower, more relaxing postures while still benefitting your body and energy. It can even be done sitting down—I have been known to surreptitiously do yoga whilst sitting on public transport! I read some research after my diagnosis that showed stretchy exercise like yoga, tai chi and Pilates rather counterintuitively boost energy levels, and it does seem to with me.

Hope you’ve enjoyed your novel @Marylin and the sound of rain outside while you’re nice and warm!

2 Likes

Thats interesting @Marilyn
My Dad was from Northern Germany.
Polycythaemia vera (PV). Its the Thalassemia of the north!!!

1 Like