Oh no need for any apologies here @Marylin, you can probably tell I like to do my reading around what we live with and any patterns there may be. A close relative of mine sadly also has an Myeloproliferative neoplasms (MPN) so it would seem they might run in our family. My haematologists and phlebotomists say families are likely to encounter the same environmental carcinogens, perhaps why we find these health-related commonalities.
I know what you mean about horrible margarines, but I’m grateful to your family for making them as now they can be almost as tasty as butter! What a great claim to fame you have. Bet you’ve heard some fascinating tales from your Danish family.
It’s so heartening to hear you’re feeling a little better, long may that last and continue to improve. Those breathing classes sound great. Perhaps also look up slow flow yoga, which adapts the breathing and movement of yoga to slower, more relaxing postures while still benefitting your body and energy. It can even be done sitting down—I have been known to surreptitiously do yoga whilst sitting on public transport! I read some research after my diagnosis that showed stretchy exercise like yoga, tai chi and Pilates rather counterintuitively boost energy levels, and it does seem to with me.
Hope you’ve enjoyed your novel @Marylin and the sound of rain outside while you’re nice and warm!
I too have started to wonder about the rarity of Polycythaemia vera (PV). Recently one of my ex-colleagues mentioned ha has Polycythaemia vera (PV). We are a micro business so its not like there are tens of thousands of colleagues (ex or otherwise). I’d be interested to find if other colleagues or ex-colleagues have been diagnosed but it’s not something I can ask without worrying people or sharing my own diagnosis.
Interesting @Lucky perhaps it is coincidence, I don’t know.
I have Chronic lymphocytic leukaemia (CLL) which is one of the most common leukaemia’s and I live in a medium sized town and I am the only one on my GP surgeries books.
I worked for a local authority and they had never had an employee with a leukaemia before.
I don’t know if I have helped or confused you further.
Really look after yourself and please do keep posting.
Yes, it may well be just a coincidence. It is the nature of random events that improbable coincidences do sometime occur, just not very often. If there was a third case one would be wondering if there was a common cause, hence my interest in whether any colleagues or ex-colleagues have been diagnosed.
Actually @Lucky I was just thinking and I was diagnosed just before Christmas 21 yrs ago and my Christmas card crossed over the Atlantic with a friend in Los Angeles and she had also just been diagnosed with the same blood cancer, she was treated straight away, I have always been on active monitoring.
She is now about 93 yrs old and lives life to the full.