Hi I am new l was diagnosed two days ago. Been feeling poorly for over a year with high white blood cells. A month l became so unwell pain in my stomach sickness and fatigue. I wonder what happened next.
I am also in heart failure l am diabetic but under good control l also have None Cystic Fibrosis Bronchiectasis. I am 71 years old. I also have very blurry vision and eyes constantly running.
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Hi @Buttie you certainly show what complex medical individuals many of us are, welcome to our forum, I am glad that you have found us, although you might well be in shock at the moment.
You also show how difficult it is to diagnose with such generic symptoms.
I am a 74yrs old female and I often joke that the only department I am not under at the hospital is maternity.
I was also diagnosed at this time of the year, 21 yrs ago and I remember feeling in a bubble with the world celebrating around me.
Perhaps make sure that the medical people that diagnosed you are aware of all your medical history, symptoms and their severity. You might also need to get an opticians appointment and make sure that they know your whole medical history too.
I also write down all my fears, questions and practicalities before all appointments so I know I cover everything.
The Blood Cancer UK website is there for you and so is the Blood Cancer UK support line on 0808 2080 888
Perhaps give yourself time to come to terms with your diagnosis, be ever so kind to yourself and please do keep posting, I look forward to hearing more about you
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Hi Erica thank for your warm welcome.
I have battle with my health for year. Before my heart attack l couldn’t get anyone to take me seriously.
Moving to Scotland has been a game changer.
I took the bull by the horn when not feeling well laying bed depleted. No need for letter for referrals when going private. I book a cardiologist appointment seen straight away.
I had a scan my heart has improved from 30% to 50%. I took on board my lifestyle and changed it.
I continue to feel unwell my Practice nurse did lots of tests. I rang with results straight away.
My focus has been on my Daughter who lives with us and is 47. She has bipolar but is a beautiful human being. I have a fantastic husband of 52 years.
I am lucky count my blessings after my heart attack in 2022 they gave five years.
I am very carm and positive and will take each day as it comes.
I have three Sister with different cancers one unfortunately passed at 43.
I am an retired Maternity Nurse.
I have a gift l put together for people that are ill or suffering a loss. A quilt for sofa days a bronze angel from Germany and crochet angel wings. I given out over 60 around the world.
From a poor abused up bring l am blessed to live an amazing life.
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Wow, @Buttie what a life you have led and I am so impressed how you have changed negatives to positives in your life.
Your move to Scotland really seems to work for you.
When I was diagnosed with Chronic lymphocytic leukaemia (CLL) 21 yrs ago I was told that I had a life expectancy of 5-10 yrs and I am still here
You sound so blessed with your husband and daughter.
Your quilts and bronze angels sound absolutely stunning.
My new years resolution is to continually work on my gratitude list.
The Blood Cancer UK support line is also there for you on 0808 2080 888
Really look after and be kind to yourselves and please do keep posting
Wow, what a journey.
It sounds like you have been really proactive when it comes to your health which is so important.
Your family sounds amazing and so do you! I hope the forum is a support to you. It’s amazing having people who just understand.
Take good care of yourself x.
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