Hi everyone my names Ang and when I was 57 years old when I was diagnosed with Large granular lymphocytic leukaemia (LGLL) in March 2013, 12 years ago. Im on a watch and wait.Bloods every 6 months.
I had no symptoms, it was found on a routine blood test, my Lymphocytes were high, I then had an appointment at the hospital in haematology, I was told my T cells were clumping, I was not told straight away that I had blood cancer so on my second appointment I said I needed to know what this ment, I couldn’t just say my T cells are clumping ?? So finally I saw a different haematologist who explained I had blood cancer called large granular lymphatic leukaemia (Large granular lymphocytic leukaemia (LGLL)) & that it was slow growing & I could have it for years before treatment ,if it ever needs treatment & to go away a get on with my life.
Obviously it was a great shock when you are told you have cancer & I can remember coming out of this appointment and crying it was like someone had died.
At the time I only told close family & work friends, obviously my husband who was with me & is very supportive. Over time I have told more people but not my grandchildren, I don’t want to worry them & some were not born when I was first diagnosed.
It has taken some time for me to be confident with this diagnosis and with support from my husband,Family, friends & my Gp at the time.
I have lived my life as best as I can, I can get stressed before my 6 monthly blood test & I usually like to have blood test before going on holiday, just to reassure me I’m going to be well while I’m away.
I hope anyone who has just been diagnosed with Large granular lymphocytic leukaemia (LGLL) can see you can be well for a long time with this type of cancer.
