Hello
This is my first post.
I returned from a wonderful Greek holiday to celebrate my 60th birthday in June this year to a diagnosis of Large granular lymphocytic leukaemia (LGLL).
I’m neutropenic - my neutrophils sit at around 0.6 - Just waiting results of Bone Marrow Biopsy.
Hopefully won’t need any treatment just watch and wait.
I’ve never spoken to anyone with Large granular lymphocytic leukaemia (LGLL) so thought I’d post here.
June
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Hi @June
Am really sorry to hear about your diagnosis . I have a different diagnosis so can’t really help with information or advice but just wanted to say hi
There will be someone who has similar experience and will be able to help am sure !
Take care
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Hi @June a great big welcome to our forum and I am so glad that you have posted.
Firstly a very happy 60th birthday. Oh, a Greek holiday to celebrate does sound wonderful.
I was diagnosed with Chronic lymphocytic leukaemia (CLL) 20 yrs ago and my 70th birthday was my best ever.
I have always been on watch and wait (active monitoring)
I attach the Blood Cancer UK details of Large granular lymphocytic leukaemia (LGLL) Understanding LGLL | Blood Cancer UK
Also watch and wait Active monitoring (watch and wait) | Blood Cancer UK
Perhaps it is worth writing down any fears, questions or practicalities for your next medical appointment.
The Blood Cancer UK support line is there for you on 0808 2080 888
I hope someone who has Large granular lymphocytic leukaemia (LGLL) can help you
I look forward to hearing more about you and really look after yourself and please do keep posting
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Thank you - yes hopefully I’ll just be on watch and wait.
Happy to hear from anyone else with Large granular lymphocytic leukaemia (LGLL) which my consultant tells me is incredibly rare.
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