Thanks Erica had a load of new blood work done had multiple vitamin deficiency’s as well as a still low red blood count just had an upper body scan awaiting results had high esr crp inflammation markers also which never had before low iron folic acid all very strange am terrified to be honest had a lot of visual problems as well last few weeks still awaiting answers really not good
1 Like
Oh @ross32 I am so sorry to hear that you are feeling terrified, it must be horrible for you.
Perhaps it is worth ensuring everyone is aware of your visual problems.
I am so impressed with the thoroughness of your tests.
Many years ago my GP nurse said to me if we do enough tests we will find something wrong.
You and your medical team cannot do anything till all the tests and results are back and as we know the waiting is the worse feeling and really brings so many thoughts scary thoughts.
We are here for you to say exactly what it is like for you and the Blood Cancer UK support lie is also there for you,
Please update us as and when and really look after yourself
Thanks Erica I’ve just been sleeping a lot got a lot of people helping me out just waiting is really up setting I recently had couple of moles removed to make sure it wasn’t skin related but came back ok I’ve also been sweating a lot which I’ve never done before the wait is really scary just want to know what it is an try an not self diognoise my self which I’ve been guilty of
1 Like
Oh, @ross32 aren’t we all guilty of being a doctor in our heads, I am watching the box set of ER at the moment !!!
You are so right it is the not knowing isn’t it, my head goes into a washing machine.
I have recently had a skin cancer op on my head, I am also really sweating a lot in this weather especially on my head wearing a very fetching protective hat. I look a mixture of Friar Tuck and Worsel Gummidge.
Hang in there and diversion tactics help me like music.
Take care and be kind and spoil yourself
1 Like
Thanks a lot Ericka sorry to hear that as I say I’ve have very cold hand and feet even when it’s hot but no idea why mild anemia but just trying to locate why very strange think it’s the fact I’ve not felt right for a long time plying on my mind have i left something to late I’ve always had joint and stomach pains from when I was a kid so just hoping I haven’t missed nothing hopefully should have some results next week thanks for the concern appreciate it
2 Likes
Hello @ross32,
Sorry to read that you still don’t have many answers. How frustrating for you! It does seem that they are being through in trying to get to the bottom of things for you.
I bet you were relieved to know that the moles weren’t cancerous. Sometimes it’s just a case of ruling things out and saying what it’s not, rather than sating what it is. It would seem you are a bit of a mystery to the medical teams!
Have you been started on Folic Acid tablets? Sometimes what we would think are ‘simple’ vitamin deficiencies, that shouldn’t cause major health issues, really do! Hopefully once you begin the tablets you’ll start to feel better.
Keep us posted on how you are getting on.
Kind regards,
Heidi.
1 Like
Thanks For the reply I’ve started the folic acid and iron supplements but from what I’ve read I’ve seen next to no one with them deficiency’s who haven’t got a serious illness plus the night sweats are becoming really troubling and visual problems are becoming an issue the fatigue I’ve got like nothing I’ve ever experienced to be honest
2 Likes
Hi @ross32 I have been thinking about you, how are you doing now?
Look after yourself