I’ll keep you updated thanks for the help ambulance on its way by sound of things
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As others have said @ross32 please tell them at A&E everything you are suffering from, how bad it is and that you have been bedbound for a couple of months.
As you wait for the ambulance it might be a good opportunity to write down everything you want to tell them, even if you might not think it connected, also tell them your fears, stresses and anxieties.
We are all thinking of you, please post when you can.
Look after yourself
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Hello @dmquinlan
Well done for taking on the Ride London/Essex, what a great achievement and also a huge Thank you for taking part!
I can appreciate being told your platelets are low can be confusing and might be worrying, especially if you feel well. Hopefully you are able to get more blood tests booked in soon and you don’t have to wait too long for your results.
Please keep us updated.
Stay well! Best Wishes, Heidi.
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Will do thanks very much went to a&e last night there was a 9 hour wait no one was interested to be honest got put in a waiting room despite coming in by ambulance gonna see my gp again our try speed things up with a specialist
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Thanks Erica my uncles gonna take me to the gastro next week managed to get a private appointment through insurance to discuss results and tell him my concerns as he deals with hemoglobin levels etc hopefully if it’s not gasto related he can refare me on to appropriate specialist
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Thank appreciate it will do
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Thanks for that appreciate it
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Hi @ross32. How frustrating for you to make all that effort to get to A&E and then not get any answers. It sounds a good plan to arrange that gastro appointment next week. I really hope you can get some explanation and help regarding how unwell you have been feeling. Thinking of you and wishing you well. Willow
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Thanks for that I’m trying to see my gp tomorrow feeling more helpless by the day I really am
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Hello @ross32, sorry to hear that after all your efforts, there was a very long wait in A&E. Not ideal when you feel so poorly to have to sit out in a busy waiting room. Despite having a private Gastro consultation booked, please do follow up with your GP as well. Whilst you are waiting for that appointment, it might be a good idea to jot down a timeline of events to take along, sometimes the smallest statement or rapid change you’ve had may alert the Doctor to undertake other tests. I hope that the Gastro team are able to give you advice or like you say, refer you on to another team if needed.
Take care, keep resting. Best Wishes, Heidi.
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Just an update went back to a&e with my uncle very had a lot of blood work chest x ray ecg only abnormal thing is that my red blood count had come down a little again to 132 From 138 in may highest was 150 last year borderline anemia for a man white cells were fine nurse thinks it could be diet stomach related but was not 100 percent alot of specialised blood test waiting to come back by Monday which a&e done after me telling them how bad I’ve been feeling still very nervous and feel really un well but hopefully it’s stomach related gasto doctor will probably tell me more next week if it’s not stomach related I’ll probably see somone else the blood count definitely explains how un well I’ve been feeling just need to know what’s causing the issue now thanks for the help & replies lately
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Hi @ross32 please let us know how you get on next week.
Not know must be horrible for you
Look after yourself
Hi @Heidi_BloodCancerUK ,
I have had a quick chat with haematology nurse after my follow up test on Friday. Don’t have details, but drop in some key items, so I’ve decided to shield immediately.
Nurse raising with consultant so hopefully some swift action. The speed is a concern, but thankfully in system now as it was caught at annual consultation. I feel so sorry for those who have to fight with their GP to get seen, especially now after how the whole patient / GP relationship has changed due to the pandemic… getting a face to face consultation seems quite tricky!
take care all,
David
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Hi @ross32 I have been thinking about you and I just wondered how you are doing?
Take lots of care of yourself.
Sorry for the reply I’ve bin seeing a number of different specialist as the Gastro could not get to the bottom of it the the red blood count having a full body ct scan next week and just seen a demotolgist regarding a lot of moles I have removed had a lot of itching with no rash lately also stressfull few weeks but should have answers soon hopefully thanks for the concern Erika
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