Thank you @Shaka, it is definitely a positive discussion and you make such valid points and I am not surprised you often feel lost and forgotten. When you think there are at least 137 types of blood cancer, many with similar symptoms and there are also other conditions with similar symptoms as well it not easy. You can always contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 (10am-7pm Monday-Friday or via email at support@bloodcancer.org.uk if you need support.I would be interested to hear what it is really like to be you at the moment.