So understandable you feel like you need to hear how others felt upon diagnosis of monoclonal gammopathy of unknown significance (MGUS)! In case it’s helpful, here’s two other conversations around monoclonal gammopathy of unknown significance (MGUS) -
Hi’ and welcome Clairelou, like yourself I too have a diagnosis of IgG lambda paraprotein and remain on Watch and Wait. I regularly read through posts on this support group as it allows me to not feel quite so isolated even though I find it difficult to openly share and participate in posts being a very private individual. I can relate to what you have said and I’m glad that you have found Blood Cancer UK and its Forum.
Thank you @Shaka , it is definitely a positive discussion and you make such valid points and I am not surprised you often feel lost and forgotten. When you think there are at least 137 types of blood cancer, many with similar symptoms and there are also other conditions with similar symptoms as well it not easy. You can always contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 (10am-7pm Monday-Friday or via email at support@bloodcancer.org.uk if you need support.I would…
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