I was diagnosed with Monoclonal gammopathy of unknown significance (MGUS) 5 years ago and have had no apparent symptoms. However my eyes became very sore and I could see something in both eyes. I was referred to a corneal eye clinic and told I have keratopathy for which I’ve been given eye drops. Research suggests it can be related to Monoclonal gammopathy of unknown significance (MGUS). Just wondered if anyone else has the same problem?
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HI @Dora a great big welcome to our forum.
It is a very good question for your nurse or medical team, who personally I always feel need to know what is going on for us.
I hope others will be able to share their experiences.
I look forward to hearing more about you.
The Blood Cancer UK support line is also there for you on 0808 2080 888
Look after yourself
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Hi @Dora,
Thank you for your post. There is some research which suggests that eye problems can be related to Monoclonal gammopathy of unknown significance (MGUS). It seems that this is quite rare, but, I have found this thread from a few years ago with other forum users diagnosed with Monoclonal gammopathy of unknown significance (MGUS) discussing issues with vision:
MGUS questions - General chat - Blood Cancer UK Online Community Forum
It sounds like they have experienced different issues to you, but, you may still find this useful to read through.
It’s great to hear you have been seen by the eye clinic, and, hopefully the drops will help. But, as Erica has mentioned it would also be a good idea to update your GP or haematology team about your symptoms so that they are aware.
If it would be helpful to talk things through in more detail, please don’t hesitate to contact our nurses on the support line or via emailing: support@bloodcancer.org.uk
I hope you hear from other forum members, too!
Kind regards,
Tom
Support Services Manager
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Thanks - plan to have a chart with my GP.
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