MGUS general chat

Hello @Anna82, apologies that it has taken a few days to respond. I can only imagine how worrying this situation is for you, I’m so sorry.

Rather than turning to Google, I want to make sure you’re able to get accurate information and some support for the understandable anxiety you’re experiencing.

Of course, the best people to speak to about your worries are your medical team, as they will know your specific situation better than any of us on the Forum.

I’d also recommend giving our Support Services a call. It’s staffed by some brilliant blood cancer nurses and you can reach them on 0808 2080 888 or email support@bloodcancer.org.uk. They can talk through your more medical questions and your worries too.

You might also find it helpful to read through some threads where other people have shared their experiences with Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (MGUS))) and the anxiety that comes with it:

MGUS, Anxiety, Guilt and Uncertainty
MGUS with Light Chains
Light Chain MGUS monitoring

Please do keep posting here if it’s helpful, as you’re not alone in feeling this way and there are others here who understand what it’s like to live with Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (MGUS))) and that worry about progression.

Take care,
Ceri - Blood Cancer UK Support Services

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