Hi @helenfwallace I am not a medical person but I was alendronic acid tablets weekly for osteoporosis for ages, following the instructions, with no problems.
I also have reflux.
I understand you are naturally anxious so please do tell your medical person who wants to prescribe it about your concerns.
Please do let us know how you get on.
Look after yourself
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Do you take Omeprazole Helen?
Its very good for reglux and stomach problems
Worth seeing if you can use it if you are not at present👍
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Thank you @Erica. Logic tells me that these are both very common medical problems so there must be many people around that have both conditions. Your experience is encouraging.
Best wishes
Helen
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Hi @Leefer,
Many thanks for your suggestion. I am currently taking Lansoprazole, which is a PPI like Omeprazole. I am being referred for gastroscopy. I also have bought a wedge pillow which I tried last night. Had a comfortable night’s sleep but dont know yet if it has done anything for the reflux!
Best wishes
Helen
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An update, the coeliac screen was negative, so I am now waiting on a prescription for the Aledronic acid tablets.
Helen
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Hi Everyone,
An update. After a very long wait, possibly a year, I eventually got to see an Endocrinologist who was very nice and ran some blood tests and a urine test. I got the results a few days ago. The PTH levels have come down but still above the upper reference limit, Calcium levels seem to have stabilised around 2.54, and vitamin D levels were normal, but there was calcium in the urine. So I am going to have an Ultrasound Scan of the Thyroid/Parathyroid glands and nuclear medicine test, all booked for the next few weeks. So it now looks that I might have a problem with the parathyroid gland after all and this could be behind the osteoporosis, possibly also the frequent urine infections I have had of late and muscle cramps. Wonder if there is any connection with Monoclonal gammopathy of unknown significance (MGUS)?
Best wishes
Helen
Ps at least I managed a decent walk between rain showers.
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Oh @helenfwallace aren’t we such complex, very special individuals.
Please do keep us updated.
I am glad that you managed a decent walk between rain showers, so did I. I was on a towpath with no turning off points and as soon as the sky became ominous and it poured with rain nearly everyone seemed to disappear, no idea where they disappeared to.
I got into our town and I appeared to be the only soggy person.
When I got home the weather really deteriorated, so I was a very lucky girl and felt a lot better for my fresh air exertions.
Look after yourself
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Please keep us updated @helenfwallace. It seems like you’re team are on the ball. I hope others can share their experiences 
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Hi @Nichola75
Oh I do wish this was the case.
The referral to endocrinology only happened because I saw a GP that believed every patient had a right to a second opinion even if they themselves thought nothing was amiss. I was very lucky in this respect.
Haematology ignored the fact that the PTH test they ordered was out of range.
Endocrinology listened to me and said I was absolutely right to ask for a referral.
I will update on what the scans show.
Best wishes
Helen
Ps. One of my sister’s is be checked for myeloma because of raised Vitamin B12 levels. She herself is more concerned other more urgent health issues.
Oh @helenfwallace you and your sister both have a lot going on
Please do keep posting how you both are and really be kind and look after yourselves.
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Hello everyone. It has been a while since I last wrote here. I had Monoclonal gammopathy of unknown significance (MGUS) light chain kappah IgA diagnosed in 2021. Monoclonal gammopathy of unknown significance (MGUS) has been fairly stable until now , the light chains has been steadily increasing. However suddenly the light chains had increased and has nearly doubled within 6 months and increased to nearly a 100. Has any of you was diagnosed with Myeloma with similar levels? I called the Hematologii today, but my doctor is away, the nurse tried to calm me and said that in her eyes it is still the Monoclonal gammopathy of unknown significance (MGUS).
Googled told me that most likely I will get Myeloma with the next year or 2. I am 43 with. I am really concerned, my child is still very young. And I am the only support for my mum. How much time do I have left?
Hello @Anna82, apologies that it has taken a few days to respond. I can only imagine how worrying this situation is for you, I’m so sorry.
Rather than turning to Google, I want to make sure you’re able to get accurate information and some support for the understandable anxiety you’re experiencing.
Of course, the best people to speak to about your worries are your medical team, as they will know your specific situation better than any of us on the Forum.
I’d also recommend giving our Support Services a call. It’s staffed by some brilliant blood cancer nurses and you can reach them on 0808 2080 888 or email support@bloodcancer.org.uk. They can talk through your more medical questions and your worries too.
You might also find it helpful to read through some threads where other people have shared their experiences with Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (MGUS))) and the anxiety that comes with it:
∙ MGUS, Anxiety, Guilt and Uncertainty
∙ MGUS with Light Chains
∙ Light Chain MGUS monitoring
Please do keep posting here if it’s helpful, as you’re not alone in feeling this way and there are others here who understand what it’s like to live with Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (Monoclonal gammopathy of unknown significance (MGUS))) and that worry about progression.
Take care,
Ceri - Blood Cancer UK Support Services
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Hi Ceri. Many thanks for your reply I really appreciate that. I will read the links you attached.
I reached out to “my” Hematologii team. The nurse came back with comments that the increase even though high does not mean that it is myeloma yet.
But it looks like my Monoclonal gammopathy of unknown significance (MGUS) starter progressing quickly. So overall it is not good.
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Hi @Anna82 and welcome to the forum. I can see youve already been given great advice by Ceri.
I’m glad you have found the forum as there are lots of us who can support and share our experiences with you.
I think we all naturally go to worse case scenario and I definitely regretted the Google searches. On here you will find all the information you need.
Take good care of yourself and keep posting x
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Hi Nichola,
Many thanks for your reply. It is nice to have some support and understanding here. People facing illness are quite lonely especially when facing rare and complex illnesses (even when surrounded by loved ones). Wish you all the best. I will try to read more of your post. Look after yourself.
Regards
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