I’ve recently been diagnosed with monoclonal gammopathy of unknown significance (MGUS) with borderline Light Chains. I have my first appointment with my doctor tomorrow but I’m frightened that because Light Chains are involved does it means that it is more serious and fatal.
Hi @Suan1952 a great big welcome, I know I was in shock for a long time after I was diagnosed.
I attach a copy of the Blood Cancer UK information on monoclonal gammopathy of unknown significance (MGUS)
MGUS – monoclonal gammopathy of undetermined significance | Blood Cancer UK
What I would suggest is that you write down all the questions that you ask in your post and other fears, questions and practicalities and ask your doctor tomorrow and ensure you get answers that you can understand as they know your whole medical history.
Also let your doctor know what symptom you might have and their severity.
Someone might be able to share their experiences
Please do let us know how you get on and I also look forward to hearing more about you.
Really look after yourself and please do keep posting.
Thank you Erica, it’s reassuring to be able to talk to others in the same position so thank you for your reply. I will definitely let you know how I get on. I have made a list x
Hi @Suan1952,welcome to the forum. @Erica has given good advice with a link to the information for the BCUK monoclonal gammopathy of unknown significance (MGUS) info.
I was diagnosed with monoclonal gammopathy of unknown significance (MGUS) in 2020 and have gained knowledge and help since from BCUK Nurses ,booklets and the forum .I am posting a link from the Myeloma.org.uk they have a Nurses support line too.
Website.Monoclonal Gammopathy of Undetermined Significance (MGUS) Infosheet - Myeloma UK
which I found very useful plus they have an monoclonal gammopathy of unknown significance (MGUS) diary if you want to record your results.
I didnt have a recordable light chain at first but now I have ,it is an abnormal ratio and High but not alarming .
I have blood tests every four months,monitored by my GP as per instruction from the Haematologist.
They are mainly watching my heavy chain IgG Kappa but If my kappa:Lambda light chain ratio gets above 9.00 I will be seen by the Haematologist.
@Suan1952 I wish you well for your appointment tomorrow ,with your list .It is all a bit mind blowing at first but get as much info as you can it will help put things in perspective .
I’m linking the GP guide to monoclonal gammopathy of unknown significance (MGUS) that maybe helpful for you and may answer some questions you may have or help you to list questions you will have