Hello
I don’t know if I’m on the right page but was diagnosed with Monoclonal gammopathy of unknown significance (MGUS) 2 years my bloods are taken every 6 months and my results are sent to me in the post, but nobody has explained to me what my results mean for me. I have severe fatigue and I’m fed up of the doctors telling me there’s nothing wrong with me when I know deep down there is 
Any advice would be appreciated 
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Hi @Poppy07 you certainly are in the right place, welcome.
I am wondering if you have a specialist nurse contact, if so they are often a good contact to talk to.
It sounds as if you have had several conversations with doctor(s) perhaps you might consider asking for a referral to your hospitals haematology department.
Perhaps write down all your fears, questions and practicalities.
Really look after yourself and please do let us know how you get on.
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Hello there @Poppy07, welcome to the forum. I’m so sorry to read of your diagnosis with Monoclonal gammopathy of unknown significance (MGUS) and that fatigue. Sounds like it was quite a while ago and yet you’re left to wonder what is going on. Personally, I would find that very anxiety-provoking so I’m glad you found the forum.
Perhaps you might like to read the Blood Cancer UK information on Monoclonal gammopathy of unknown significance (MGUS)? I find their research and plain writing quite comforting and often go back to their information about my own blood disorder, Polycythaemia vera (PV). Anyway, here is the Monoclonal gammopathy of unknown significance (MGUS) information: MGUS (monoclonal gammopathy of undetermined significance) | Blood Cancer UK
If you continue to find your doctors are just not hearing your concerns and minimising what you live with then it’s within your rights to seek support from PALS, although I haven’t personally used their service: What is PALS (Patient Advice and Liaison Service)? - NHS
Maybe have a look around the forum (using its search box at the top) as you’ll find many others living with Monoclonal gammopathy of unknown significance (MGUS) and that might offer some relief to know you’re not alone.
Do keep us posted about how you get on.
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Thank you for replying
I’m not aware of a specialist nurse.
I’m trying to pluck up the courage to contact haematology direct, but if they sound busy or come across as though I’m making a fuss over nothing then I’m not very good at standing up for myself, but it looks as though I will have to take the plunge.
Thank you again
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Hi 
Thank you for reaching out to me.
Much appreciated.
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You’re most welcome @Poppy07!
And might I add, if you get through to a haematology nurse, it’s likely no fuss to them. Your health is their concern and in my experience I’ve only spoken with lovely, understanding professional people who hear all my symptoms and still make time for a chinwag.
They want us to feel better so sharing what you’re experiencing will help them make better medical choices, specific to you. I’ve got to know some truly lovely nurses during checkups and treatments, and hopefully you will too.
Those PALS folks are independent of the NHS from what I can gather so they too will have your best interests at heart, should you need to contact them.
And don’t forget there are other GPs out there, if you have different health centres or doctor’s offices you might like to change to nearby.
Hi @Poppy07 perhaps just think that we are all with you when you give them a ring, don’t forget be persistently pleasantly assertive, I have learnt to do it.
Let us know how you get on, have everything written down and go for it,
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