I have recently been diagnosed with Monoclonal gammopathy of unknown significance (MGUS), after months of fatique, and testing, my GP was initially looking at cancer, but each test Thank God came back fine, then my bloods showed up this Monoclonal gammopathy of unknown significance (MGUS) and all my symptoms made sense, I am worn out most days, and now on Iron, and I seem to have tingling in my hands at night, I was wondering if anyone on here had the same problems ? it makes you feel better to know others can give advice rather than the GP telling you to read the booklet Many Thanks
2 Likes
Hi @Columba26 I am glad you have found our forum.
I will not give you any links as I realise you do not want anything to read.
I am glad that you feel your diagnosis makes sense.
Perhaps give yourself time to come to terms with your diagnosis and be very kind to yourself.
The Blood cancer UK support line is there for you on 0808 2080 888.
What did your GP say about managing your symptoms.
Others may be able to share their experiences
Really look after yourself, I look forward to hearing more about you and how you are getting on.
1 Like
The GP Said, yearly check ups and here is a booklet to read, to be honest I am reading online all about this diagnosis and really want to hear from people who actually have the same blood problem, it makes sense, I told the GP that I was worn out, tired all the time, and very slow, and still he said, make sure you book your check ups and read this leaflet it will help, I am already on Iron as I am anaemic, but would have liked him to say that there were symptoms with this, instead he said its very normal, and not to worry, and read the paperwork, I wonder if symptoms are just for a few people ? because even online it says no real worries, and it should bot affect your normal lifestyle, where I am worn out and have been for months,
2 Likes
Hi @Columba26 I know that I have responded to your other post.
I hope others will be able to share their experiences with you.
You also show so well what complex individuals we are as you are anaemic as well and on iron.
Look after yourself
.
1 Like
Hi @Columba26.
It does help to be able to share experiences and I hope others can share theirs with you.
Fatigue can be so hard can’t it and impact so many things.
I hope you find value in the forum. I can see @Erica has given great advice and given the support line number. It can help to talk things through.
Please keep posting and let us know how you are doing 
1 Like