Hi everyone, I hope I am using this forum correctly and that you guys can see my messages.
My partner (26 years old) got Diagnosed with CML in December 2019, and has been following treatment on Disatinib for the past year. The doctors were really happy with his progress and were predicting for his BCR-ABLE results to be at ZERO by December. Come December, and the results not only had not gone down to 0, but had actually gone back up to around 5.5, so they have decided to move him onto Nilotinib. We are very aware thay he is in the early stages of his CML journey so were expecting bumps in the road, however the Heamotologist was really confident he was going to be down to 0, but there we are cancer keeps us on our toes…
My question to anyone out there who might be on Nilotinib is what their personal experience has been for them? My partner has been really lucky and experience very few side effects with Disatinib, so is worried about the changes this drug might have on his body. Any experience shared positive or negative will be greatly appreciated. As his girlfriend I do alot of worrying, and research really helps me feel in control and able to help.
Thanks for listening,