Hi I was diagonised MM and on second cycle this week .I am 72 years old . I did know l had this and had no infection . I found after blood test and was told after full body MRI and bone biopsy . I want to know more of this illness as is ver rare or new .l am on chemotherapy tablets
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Good afternoon, Amin,
Thank you for taking the time to share this. May we ask how you’re doing? It’s so understandable to have questions and want to know more. If you’d like to talk things through, please don’t hesitate to reach out to our Support Team (Blood cancer information and support by phone and email | Blood Cancer UK).
I thought I’d share our resources about myeloma, in case it’s useful at all-
Myeloma | Blood Cancer UK.
Myeloma booklet | Blood Cancer UK Shop.
We also have a resource for those who have recently been diagnosed with blood cancer, and I wondered if that may be of use-
I’ve just been told I have blood cancer | Blood Cancer UK.
Do you have a Clinical Nurse Specialist (CNS) allocated to you, Amin? Please don’t hesitate to reach out to them to share any questions and concerns you may have. Your team are there to support you through this journey and knowing what your concerns are may help them to better support you.
Take care, and do remember we are here for you.
Best wishes,
Tanya.
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Hi @Amin I can hardly follow @TanyaBloodCancerUK brilliant response to you.
I can really understand that feeling of isolation after a diagnosis of blood cancer, especially a rarer one that most people have not heard of…
I remember suddenly entering this world of ‘medical speak’ that was going right over my head apart from a few scary words like ‘chemotherapy’.
You are definitely not alone now, you are part of our forum family.
I have found it often doesn’t matter what our diagnosis is, we often share the same thoughts, feelings and practicalities
Be ever so kind to yourself and keep posting.
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Hi there
I was diagnosed with MM in 2017 at 49
Although not curable it’s very treatable
What regime chemo are you having
What questions do you have that I may be able to help with
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Hi thank you for sharing MM treatment . I am 72 just diagnosed with MM . I had no symtomes but my para protein was high . Started my chemotherapy treatment and this is my second cycle . I take oral lenolimide with steroid tablet . I find when I take steroid table I find second day very tired and sleepy . Are you on remission phase I don’t know about the chemolablet you take life time .
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I’m not familiar with lenalidomide as I haven’t had it for treatment
Here is a myeloma uk link for the treatment
With all chemo it can make you tired is it concerning you?
What is your treatment plan will you be having a stem cell transplant
How are your PP doing after first cycle
I am in a very good partial remission at the moment
I have had 3 lines of treatment with 2 stem cell transplants
2017 2 lines of treatment with transplant
2021 relapse start dara with Dex and velcade
2022 second transplant with maintenance dara until my next relapse
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