Myeloma - anyone else with triple hit/high risk

Recent diagnosis
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Hi my husband was diagnosed with myeloma while in hospital a few weeks ago. He had his second chemo yesterday (DVDT with thalidomide). He has 70% plasma cell burden and 3 high risk cytogenetics (known as triple hit). He has lesions and bone compressions in his spine, very painful. He is 47 and we have 2 young kids. Was wondering if anyone has had similar and has beaten this? Thanks

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Oh, @MumOfTwoBoys I am so glad that you have found us, welcome.
It sounds as if you and your husband have had a lot going on in the last few weeks.
I did not realise the shock I had when I was diagnosed, with a different blood cancer, so really look after yourselves and I dealt with my diagnosis very differently to my husband.
My mind went to the ‘what if’s’, ‘why us’ etc
I know this is very difficult but perhaps try to keep it in the day, that is as much as I can cope with.
How are your young kids, I ask because in my experiences children pick up on things and often put 2 & 2 together and make 5?
The Blood Cancer UK nurse support line is there for you on 0808 2080 888.
The Blood Cancer UK website is also there for you.
Please look after yourself as well as I expect you are looking after everyone else.
I hope others will be able to share their experiences for you.
Please do keep posting, we are here for you so you can say how it really is for you.

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Hi there

Here’s a link from myeloma uk

Here’s a link to Martin Kaiser his particular focus is high risk

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Thank you :blush:.
The boys are fully aware their Dad has cancer, it was the first question they asked. My own dad has been in remission from stage 4 non-Hodgkins lymphoma for 3 years so they have had a “good” experience with cancer.
My eldest is avoiding us (teenager!) and my youngest is clingy and very very caring of his dad.
I am totally taking this one day at a time but I also like to know everything and plan ahead. It helps me cope.
My husband is different, he prefers not to know all the details so what he does know is limited to “cancer” and “treatment” :rofl:

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Thank you that’s interesting. I will look into it.

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