Hi all out of hospital now had 2 different infections but was well looked after will be having transfusions as and when…now have silly cough and runny nose it never ends but honey qnd lemon cough mixture is helping
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Hi @Suzyq I am so glad that you are now out of hospital and was so well looked after, yes, the NHS are marvelous, aren’t we lucky to have them.
Sorry to hear about the cough and runny nose. I also think sometimes the old remedies are the best and that you cannot beat honey and lemon.
Look after yourself.
Really hope you start to feel better soon. Sending lots of love x
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Hi @Suzyq I have been thinking of you and I wonder how you are feeling now?
Really look after yourself
Just got a chest infection finding it hard to get better but i will just carry on trying Merry Christmas x
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Hi suzyq
How low are your hgb levels
My dad is now on the same meds as you from Next week and his hgb levels have dropped on the ruxtonilib already
How are you feeling now
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Welcome @Fefe to our forum and how are you and your dad doing, look after yourselves
Welcome to the forum @Fefe. I hope you are both well 
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Hi fefe im on fedratinib and my red blood cell count went down.and i had 2 units of blood …i was on 400 fedratinib but consultant decided this was too much im not feeling too bad at the moment my care team are brilliant
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Hi Suzy.
Many thanks for replying to me. Can I ask a question- bone marrow do you know what your blast stage is ? And what did your red blood count go down to before you were given transfusion. And once you were given transfusion have you managed to sustain your red count
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Hi fefe my red cell count went down to 76 after tranfusion went to 106 but now gone down to 86
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