New here and newly diagnosed EThromocytopenia

Hi Erica
The doctor I saw on Friday was a lovely lady who specialises in lumps and she was great. She thinks it’s a fatty lump but sending me for an ultrasound just to be sure . I’m pleased I saw her. I will update after Wednesdays results for my blood .

Frances

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Oh @Macymae123 doesn’t it make a difference when our doctor’s have that ‘extra something’, genuine people skills and caring.
It sounds as if the ultrasound is just to be sure and for peace of mind.
Yes, please update us after Wednesday.
Enjoy your weekend

Hi Taz

I’m pleased your feeling a little better. I saw a lovely doctor Friday and she is convinced it’s a fatty lump. To be on the safe side she is sending me for an ultrasound. I feel blessed I am getting

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Hi Erica

I had my consultation today by phone. It’s Good news . When my journey started with ET in 2020 my platelets count was 736. I have been on Asprin ever since and today my Platelet count was 613 :grinning: I am over the moon. So to all my fellow friends out there keep positive keep active and keep well xxx

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Hi @Macymae123 that is good news with your platelets and your lovely doctor is just saying she is just being thorough with your ultrasound.
I can feel a celebration coming on for you tonight.
Thanks for letting us know.
Look after yourself.

Hi
I’m in a similar situation to you. Recently diagnosed Essential thrombocythemia (ET)/JAK2. Just started on hydroxycarbomide and so far seems ok. Had visions of immediate side effects but not so at the moment. Early days.

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Hi @jojax sorry to hear about your diagnosis. As everyone is talking about essential thrombocythaemia and not idiopathic thrombocytopenia, can you please confirm which one you have. The first is treated with chemo whereas the second is usually treated with steroids.