Hi Erica
The doctor I saw on Friday was a lovely lady who specialises in lumps and she was great. She thinks it’s a fatty lump but sending me for an ultrasound just to be sure . I’m pleased I saw her. I will update after Wednesdays results for my blood .
Frances
Oh @Macymae123 doesn’t it make a difference when our doctor’s have that ‘extra something’, genuine people skills and caring.
It sounds as if the ultrasound is just to be sure and for peace of mind.
Yes, please update us after Wednesday.
Enjoy your weekend
Hi Taz
I’m pleased your feeling a little better. I saw a lovely doctor Friday and she is convinced it’s a fatty lump. To be on the safe side she is sending me for an ultrasound. I feel blessed I am getting
Hi Erica
I had my consultation today by phone. It’s Good news . When my journey started with ET in 2020 my platelets count was 736. I have been on Asprin ever since and today my Platelet count was 613 
I am over the moon. So to all my fellow friends out there keep positive keep active and keep well xxx
Hi @Macymae123 that is good news with your platelets and your lovely doctor is just saying she is just being thorough with your ultrasound.
I can feel a celebration coming on for you tonight.
Thanks for letting us know.
Look after yourself.
Hi
I’m in a similar situation to you. Recently diagnosed Essential thrombocythemia (ET)/JAK2. Just started on hydroxycarbomide and so far seems ok. Had visions of immediate side effects but not so at the moment. Early days.
Hi @jojax sorry to hear about your diagnosis. As everyone is talking about essential thrombocythaemia and not idiopathic thrombocytopenia, can you please confirm which one you have. The first is treated with chemo whereas the second is usually treated with steroids.
Hi Jojax,
Firstly, you are not alone. You have access to some wonderful people, each with their own experiences. I understand there’s so much information out there. In time you will absorb what you need to plan a path ahead. I’m 7months into my Essential thrombocythemia (ET) journey. I was diagnosed September 2023.
Im a Triple Negative Essential thrombocythemia (ET) patient, with a platelet count of 1300. I have an unusual gene mutation, which is currently being studied.
Yesterday was my 1st day having treatment. Up till yesterday ive been on aspirin. I will be on Interferon once a week. This will be done at home.
When it comes to treatment, discuss with your haematologist and family and friends whats best for you.
My symptoms are bone and muscle pain, which causes in my case extreme difficulty, esp in my legs. I also suffer regular headaches and migraines.
I would advise you to ask as many questions as possible. Im still asking questions, they help with my anxiety.
Take care.
Hi @AVALON I am so glad that you have posted and with such a helpful post for others, that is what our forum is all about.
I think anxiety is very natural because my thoughts and emotions have been on high alert since my diagnosis, how are you coping?
Look after yourself and please do keep posting as I would really like to know more about you.
Be kind to yourself
Hi Erica,
Im doing ok, thank you for asking. I hope you are coping yourself & have all you need to get through each day.
I live alone, so there are times it can be challenging. I do have a small network of friends & family which can bring comfort & support.
I look forward to speaking with you and everyone else. We are Blood Family now.
We sure are Blood Cancer forum family so you are never alone @AVALON we really understand each other.