New here? Feel free to introduce yourself here 👋

I’m Dick Morris; 74 years old, live north of Aberdeen and have been living with Essential Thrombocythemia, one of the Myeloproliferative Neoplasms, for the past five years. Treated with 1000mg daily hydroxycarbamide (hydroxyurea for those in the USA or professional chemists) plus 75mg aspirin and have been leading a perfectly normal life apart from brittle nails. Platelet numbers are higher than recommended, but the local haematology folk reckon that’s OK so far and any more aggressive treatment could push haemoglobin levels down too much.
Also have prostate cancer; was offered radiotherapy for that, but decided that the risk of it causing my MPN to mutate into something much nastier was not worth taking, so am currently just on hormone therapy. Love the hot flushes!
I retired from the Open University when I was 60 after a career researching and writing about things ecological/agricultural, and a couple of years ago found myself doing a final edit on the Bloodwise literature on the MPNs. Otherwise, spend my days managing a half acre garden, hillwalking, some cycling and bits of voluntary work.

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Hello @Katherine

Thank you for sharing your experience with us and being an Ambassador for Bloodwise. I am glad to be part of the team and happy to be working with everyone here to build a fantastic community! Explore the forum, join in a few conversations, and please let us know your thoughts and feedback!

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Hello @Blackhat ,

Thank you for sharing your story. I did some digging and your previous blogs were still on the Bloodwise website. I was able to read all of them and I am amazed by your story and some of the difficulties you had to go through.

It also seems like you have an amazing team at Kent and Canterbury Hospital and they are taking care of you and very welcoming. Its’ nice you even made friends with them!

Dylan Thomas is one of my favourite writers and his famous poem “Do Not Go Gentle Into That Good Night” is a classic for me. I always used writing and reading as a way to relax.

| look forward to reading more of your posts on here in the future.

Hello @Dan!

Welcome to the Bloodwise Forum. I hope you are finding the website easy to manage and maneuver. I was wondering if you had any advice on the Impact on children/family after going though your ordeal?

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Hello @Joan

Thank you for sharing your story with us! I am very impressed with your story and would love to know more about the stem cell transplant you had in 2006. Do you have any advice to share? any information added in the thread would be great! you can find it here: Stem Cell Transplant.

A post was merged into an existing topic: Having a stem cell transplant

Hello @DickM!

Thank you for sharing your experience with us within the safe space of the forum. It sounds like you are managing your life with Essential Thrombocythemia and it hasn’t taken your charisma away :slight_smile:

In your spare time since being diagnosed, how did you get involved with activities such as gardening, hill-walking, and cycling? Could you offer advice on places or community groups that got you involved? I know some people would appreciate the information in the living with blood cancer section of the forum.

Hello @Erica!

It is lovely to meet you and thank you for welcoming me to the team. I have gotten a grip of the forum and understanding the ins and outs of it. I am glad you are able to manage your symptoms of CLL and you are tackling everyday tasks.

I really appreciate you sharing your experience with the forum. Some people maybe coming to grips with their diagnosis and also trying to balance out work. I was wondering if you could share your experience in the forum section going back to work, while diagnosed and offer some advice during that period in your life? it could be beneficial to some people in the forum community.

Hello @Colly! Thank you for sharing your experience with the Bloodwise community forum. Every bit of information you share allows me to understand you a bit more and simply get to know you.

I was wondering if you had any advice for people in the forum community about your treatment process of the monthly IVIG and the cycles of Ibrutinib? Any information would be helpful to people within the forum. Please feel free to join in a few conversations and let us know your thoughts and feedback!

Hello @Corfu80!

Lovely to meet you and welcome to the Bloodwise community forum. I want to congratulate you on your 10 year success recovery after your experience with AML. It sounds like your family was very supportive during your ordeal and have been by your side.

You said your children were 21 and 18 at the time of your diagnosis, I was wondering if their is any advice you could give to Bloodwise community members about telling children about your diagnosis? I feel like its an important topic and many people wouldn’t know how to even start the conversation about it.

Also @Corfu80 please feel free to join in other conversations and provide any feedback you can!

Hello @Jane!

Thank for sharing your experience with the Bloodwise community and I look forward to meeting the ambassadors. I also want to say congratulations on your remission 2.5. years ago and it must have an uphill battle dealing with AML when you were diagnosed in December 2014.

@Jane I was wondering if you could share some advice to the Bloodwise family about finding a new normal after your treatment had finished? Some people in the forum could use some of that information in the future and help them manage their day to day tasks. Anything would be greatly appreciated.

Hello @Nirroc!

Thank you for sharing your experience with us as a community. it makes us stronger when we get to know everyone’s story. I did some digging and found the articles you have written and I hope you don’t mind me reading them. Your journey seemed difficult and I am glad you are part of the forum. Many people could use your knowledge about your diagnosis with MGUS in 2011 and it converting to Myeloma in 2015.

In your blog, you talked about a low chance “1 in 20” of MGUS developing into Myeloma. I was wondering if you were dealing with any anxiety at the time? Or if you were constantly worried about it?

It would be amazing if you could offer some advice for people in the anxiety-managing forum thread and how you were able to manage it. @Erica mentioned how she was in a bubble with fear and worry during her process with CLL.

Have any of you guys competed in Bloodwise events? I am the new guy around the office at Bloodwise. I am thinking about competing for one of the events.

I am not for sure which one I would like to do. I was wondering if anyone could offer any feedback to myself or anyone in the Bloodwise community in the competing for bloodwise forum thread? any training methods or regimes that might be useful. it would not only help me out, but also members of our community too!

@SAMBAAA’s blog enspired me to consider jumping into the fray. Feel free to give it a read.

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A post was merged into an existing topic: About the Living with and after blood cancer category

Hello everyone! I thought would also bring into the discussion of the importance of diet and exercise. Their is forum thread called diet and eating well. I thought it would be an interesting conversation since we will all benefit from it. We could also learn from each others diets and how to improve ourselves.

Let me know what you think.

Hi Joshua

Thanks for reading my blogs. They were written to be shared with as many people as possible in order to make people aware of what blood cancer is and what it means. Happy for the blogs to be shared with the forum.

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Hello Everyone,

I thought I would share @Nirroc’s blog with the Bloodwise forum community. its well written and goes into detail for each stage of his diagnosis and treatment. You can find a link to his blog HERE.

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Hello Everyone,

I thought I would share @Nirroc’s blog with the Bloodwise forum community. its well written and goes into detail for each stage of his diagnosis and treatment. You can find a link to his blog HERE.

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Thanks so much for taking the time to write your blog, it is so well structured and written and I really felt I was right there with you, take care.

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Thanks Erica. Appreciate you taking the time to read it and for your comments.

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