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391

Thanks Erica. Iā€™ve got a few weeks off before the next wave of treatment hits me so planning a couple of excursions as a treat.

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392

Thanks Anthony. It was a rough few months. The next wave of treatment is in a different hospital as Lewisham hasnā€™t got the expertise or resources to do a bone marrow transplant so hopefully better awaits.

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Thanks Nic. Iā€™ll be hoping for better for the next wave of treatment as itā€™s at a different location but could be a long year again. Role on 2020 :-/

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394

Good luck. I hope it all goes well :slightly_smiling_face:

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395

Good luck Franco
I hope that the next round of treatment goes well.
Best wishes
Anthony

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396

Hi Nichola,i read alot too,also writing a book,with my own illustrations in,i also do photography and make cards for peoples birthdays. Ive done more hobbies now than before diagnosis.

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397

Wow, thatā€™s sounds so good!

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398

Hi, you deserve lots of excursions and treats, please tell what you do.

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Yes, perhaps you do need to spend more time on you, take lots of care, extra soothing bubbles in your bath and a few treats.

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HI and thank you for the warm welcome.
My name is Lily and lā€™m from Kuala Lumpur, Malaysia. I have been diagnosed with AML for almost a year now. I found out l have leukemia back in March 2018 and l have gone through chemotherapy treatments and l had my SCT transplant through my sister as my donor on 5 Oct 2018.
It has been a long and challenging journey for me. Knowing how it feels being scared and be brave at the same time. It thought me how to always believed in God and always be thankful that your love ones are the actual people who are the fighters.
Beside sharing my journey as a cancer patient, l wish to learn and know others as well.
Thank you.

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401

Hello @liliez,

Thank you so much for sharing your experience with AML. I am so sorry to hear about your diagnosis and I cannot imagine how difficult it must have been for you. However, I am delighted to hear that your sister was a match for a stem cell transplant and that you would like to share your journey. How are you feeling now since treatment?

Thank you so much for sharing your journey, thoughts, and expertise with us. I think your knowledge will be very valuable for others in similar circumstances. Please feel free to share as much or as little as you would like with the online community.

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Dear Joshua,

Thank you for the reply and make me feel welcome to Bloodwise forum team.

I hope to get to know more about the challenges that others are facing and hopefully it will give me the strength to fight my battle without feeling alone (sometimes).

Thanks again.

Lily

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Hi Lily, I am so pleased you have found our community forum, there are a lot of posts and information on this site. What I have found is we are all special unique people but what we all seem to share is the fears, thoughts and feelings and yes, often it is very challenging. You have had so much going on in the last ten months that perhaps your body must be exhausted, emotionally and physically, and now is the time to just to be kind to yourself and take steady steps to give yourself time to recover. If you feel you would like to talk to someone the Bloodwise Support Line details are above. How has it been for you all emotionally?

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Welcome to the forum @liliez I hope you find it helpful. It sounds like you will have a great deal of experience to share too x

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Dear Erica,

Thank you for your kind words. I feel that lā€™ve known you for quite sometime

10 months is like a rollercoster ride for me. When the first time l heard the word leukemia l got really scare. Not knowing what to expect and how to react. It took me few weeks to accept the truth. l felt so alone and l felt that no one could help me.

I had to endure all sorts of treatments, the pain in letting the nurses took your blood everyday. Hate the needles so much. When l looked at other patients who suffered much worst, l realised that l am grateful l am still strong to fight and l will not give up.

Emotionally l have accepted the reality that l am a cancer patient and l believe in Godā€™s will. He gaves me the strength and faith. I have to believe in myself that l want to get well. My journey for recovery is still a long way to go. I hope l will be strong to fight on.

Thank you.

Lily

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406

Hi Nicola,
I was diagnosed with AML in 2015 and also was treated with Chemo only (transplant only if it relapses). I live in Lincolnshire so was treated at Lincoln Hospital. I had the NPM1 mutationā€¦ have you heard of that? Donā€™t know about you but I found the treatment incredibly tough. I know exactly what you mean when you say ā€˜mentally its tortureā€™ā€¦ I would say that since treatment finished Iā€™ve found so many aspects of it all difficult and some that I never even imagined would be affected by it! I hope you find this forum really helpful, I know I had so many questions and thoughts when I was at the stage you are at.

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407

Hello everyone, my name is Hannah and I have Hodgkinā€™s lymphoma, diagnosed one week after my 21st birthday.

Still unstaged even though I am two cycles into ABVD because they were unsure if my bones were lit on the PET due to my arthritis or whether or not it was the cancer ā€¦

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Welcome Hannah
Sorry to hear you were diagnosed just after your 21st birthday, I hope your treatment is going ok? How are you feeling about it at the moment?

There are some posts in the forum hopefully you will find helpful. Feel free to ask us anything or start a new thread if there is anything in particular you want to chat about.
Also via the Bloodwise website there is lots of information you can either download or order free.

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Hi Hannah. How are you dealing with the effects of ABVD? I was diagnosed with an unusual presentation of HL when I was 51, 11years ago. The week I had chemo wiped me out, then the 2nd week I felt more able to see friends etc. I had a Hickman line which made blood tests and administering my chemo easier. On the forum you will find tips on dealing with nausea and fatigue, or you may find there is something not on the forum that you would like to share. Good luck with your treatment

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Hello
Iā€™m John(48) from Hampshire and happy to say 4 years clear from Non Hodgkin lymphoma.
Diagnosed quickly by my gp on first visit in August and started treatment in September.
My daughter Abbie also had cancer in 2006 (Wilms tumour) and now 12 years clear.
Had enough of cancer in our family and keen to learn how to best to keep it at away.
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