Thanks Eric, I’m sure my cat will be fine, although there is nothing funnier than your cat/dog high on meds after an op hehe! Yer i love the pool if i ever win the lotto i’m getting a pool. thanks Eric, take care.
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Hi @chelle151 I have been thinking about you and your cat and I just wondered how you are both doing?
Look after yourself and keep cooking and swimming.
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Hi, Erica hope your well and enjoying the sun! I just got my new blood results and i’m happy to say they are good or stable as the Dr put it last time my Kappa free light chains were 66 this time they were 65, okay not a big difference but at least it’s lower right? My Dr said this is my new base line and he hopes i’m going to stay like this for a while, fingers crossed I will. My 3 main blood tests for mgus they look out for are normal only thing too flag up was my liver enzymes there 57, normal is up to 50 so he said he needs to consult with a senior Dr and they will keep an eye on it. So my next bloods are in three months because they want to make sure i’m staying stable then it will be back to every 6 months, so everything is cool! Well I’m gonna go now hope everyone is good, talk soon thanks 
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Oh @chelle151 yes, good news everything is cool !!!
Look after yourself
Hi, Just to up date you on my cat she had her op and she was great she’s doing brilliant, we have also inherited a new cat Bella my Mother in law passed away so we took in her cat, didn’t want her going to another shelter she doesn’t do well in them. She’s lovely very shy, my husband loves her. My daughter has just changed jobs in another school and moved too she loves the new place. So everything is going good. Have you been crocheting? My daughter crocheted 2 bags for me I love them, well take care of yourself
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Hi@chelle,thats all good news although sorry to hear your Mother -in -Law has passed away.I am sure her cat will be very grateful to come to a loving home.Over the years weve always had rescue cats,after the last one died the Grandchildren took over and we now have birds to feed 
with no cats .
Lovely that you have the bags from your daughter and that she is happy ,its sogood when your children are settled and happy.
I dont crotchet, never got the hang of it ,Im k nitting up all my stash ,putting the colours together ,it will come out as a mini throw I think🤔 ,main thing is its relaxing and creative and I enjoy it.
Im glad to read your bloods seem settled and hope the liver enzymes settle down.
Thanks for updating me and take care too .
Bannanacake .
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Hi @chelle151 I am sorry to hear that your mother in law died.
I am glad your cat is doing well after her op and now has another cat as hopefully a friend.
However old my son is I still get emotionally (and practically !!!) involved in his new job or house move. I am so glad that she is happy in her new place, that’s all you want for your children.
Your crocheting sounds lovely, I did it around the time my son was born and my signature skill was flowers in squares in any wool I could get hold of.
Your bags sound lovely.
Look after yourself and please keep posting
Hi all, I have just been reading across all the posts above. I have recently been diagnosed with MGUS incidentally as my GP was trying to make sense of multiple things going on in my body, since having COVID in January 21. I have become super sensitive to various medications as well as having numerous infections and generally feeling unwell. In June my GP decided to do a complete blood screening which showed possible MGUS and directed me to various cancer websites for information, which I admit freaked me out. Have just had bloods done and PET scan again and was told today that my igG reading is up on the readings in June. Although I am still considered low risk at the moment I am now feeling quite frightened and have to repeat bloods in three months. While searching for information, (yes I know I shouldn’t search the internet for info!) I came across this forum. My wonderful husband is looking at the positives but I’m silently freaking out!! The prospect of having to go through testing every three months and waiting for results seems cruel at best and in some ways I wish I didn’t know about the MGUS and that ignorance is sometime bliss. I’m giving myself a good talking to but it’s not working at the moment. I’ve always been someone who can manage to pull myself up in difficult situations but struggling with going from someone healthy to feeling I have no control over this.
Thankyou for reading…xxx
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Hi @AllyBally and I am so glad that you have found us, welcome and the Blood Cancer UK website gives some reliable information
Please don’t feel that you have to give yourself a good talking to as I personally believe that you are very naturally in shock with the news that you have had.
I was diagnosed with another blood cancer 18 yrs ago and the internet gave a startling prognosis and I came home and wrote my will and funeral music.
I am also on watch and wait (active monitoring) and always have been.
I count myself as a very lucky girl and cared for by the NHS as the regular testing will pick up any concerns.
Yes, I still get anxious before and after any tests, results or appointments.
The waiting and being out of control are the worst feelings.
Yes, it is natural for others to look for positives to make them and us feel better.
That is why I find our forum so useful as I can say it how it really is for me and feel supported.
I think my emotions have been high alert ever since my diagnosis.
Please just give yourself time, be kind to yourselves and spoil yourselves oh, and keep posting.
Hi Erica, thankyou for the welcome. It means a lot just at the moment. Have been really struggling today and reading various posts I am also feeling that with so many people supposedly having MGUS, why there seems to be so little understanding and awareness? It has taken me nearly two years to get a confirmed diagnosis. I had been to my GP more in the last two years than probably the rest of my life put together and knew there was something going on. I told various GPs and other consultants that I thought there was something going on with my immune system. I had 9 rounds of antibiotics in one year, some of them I had an extreme reaction to and then developed something that required surgery, which I had in August. Even the surgeon and the nurse at the premed didn’t know what MGUS was and I couldn’t really tell them, as at that point it hadn’t been diagnosed (just possible) or explained to me properly.
You described exactly how I am feeling at the moment with the confirmed diagnosis and the rise in levels since my first tests. Yesterday the doctor and the nurse I spoke to during my telephone consultation both asked me why I was getting upset! I then didn’t ask the questions I needed to ask so I will write my questions down ready for next time. Today has been super difficult as I begin to get my head around everything, but thankyou for your support and sharing your story. Xx
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Hi @AllyBally it is so natural that you are struggling. You are now part of our forum family and there is reliable information on the Blood Cancer UK website and the Blood Cancer support line is there for you if you would like to speak to someone.
You can post how it really is for you on here and I bet we will understand.
Sometimes perhaps medical people are working with their medical matters every day and perhaps forget the impact a diagnosis and their wording have on their patients
Just really look after yourself, be very kind to yourself and keep posting.
Yes of course Erica. I hope what I said didn’t come across as critical, as it truly wasn’t meant that way. I have had amazing care over the last couple of years but have been surprised that blood disorders and cancers are not recognised more.
Again your kind words are helpful and the work that you do to support others when dealing with your own stuff is remarkable. Thankyou.
Thankyou to Bananacake as well for listening…I have read many of your posts. It feels good to exchange thoughts. Xxx
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Hi @AllyBally
I found out I had myeloma by accident via A&E for a gall bladder infection
In hind sight and if my GP had been more aware I was probably MGUS to begin with
I put my symptoms down to being menopausal
Myeloma had been active for 6-8 months before I knew anything about it and damage was already done
I can read how your feeling, can I say at least your MUGUS has been recognised and you are being monitored regularly
I have included a download from Myeloma UK which was a great source for me at the beginning of my journey
Hopefully that can explain a bit more about MGUS
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Hi 2DB,
Thankyou for the information. Sorryvto hear how you found out, that must have been really difficult at the time , already feeling so unwell.
Yes, I too have dismissed some of my symptoms as being menopausal and it’s difficult to work out if symptoms are related or all just piling in together
I hope you are doing ok at the moment. I will have a read of the link you sent. Many thanks, speak soon I hope. Xx
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Hi @AllyBally
Thank you for asking I’m doing well I’m. 5 years into my myeloma journey second transplant
It was a bit of a whirlwind beginning
I was diagnosed on a Wednesday and having chemo the following Friday
I didn’t really have time to think it was once I was in partial remission that it hit me
You sound a positive lady arm yourself with good information
X
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Morning,
Firstly feeling your pain and anxiousness regarding MGUS.
I was diagnosed March this year IGG lambda,dreaded words wotch wait.
My IGM was off but these blood tests are at bottom end off scale however .
Hips and lower back pain for me ongoing,so blood tests January.
Keep selfs ok kev
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Sorry it was morning when I wrote it …
Wasn’t till granddaughter come over I realised not sent it .
Tech stuff yikes
Afternoon
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Hi @Kevin1
Thanks for your message. Yes, I’m just getting my head around things as my latest readings have gone up a little. Now also on watch and wait until next bloods at the end of February.
I think for me it’s the uncertainty of all this, as I am a planner and like to look ahead. That’s quite difficult at the moment isn’t it?
Sorry to hear your diagnosis. We just hav to keep our fingers crossed. Look after yourself and hoping your results in January are still low risk.
Warmest wishes.
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Hi I was diagnosed with mgus in nov 22 IGg kappa I to have found doctors know little about it even the nurses who take my bloods regularly had to ask what light chains are . My bloods have been increasing over the last year and are double what they were anxiety is in my life now as everyone says there is so much information on this site and it’s good to know your not the only one feeling this way take care
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Hi @Annw,
You are not the only one feeling this way. I have found it useful just to read others experiences as my family seem to not understand how anxious I am and how that impacts on a daily basis. I’m sorry you are struggling at the moment, I can totally understand. My MGUS was picked up by accident after a load of bloodtests to find out why I was so unwell. I keep being told I am still low risk and not to worry but the waiting is very difficult. I’m told often that I am lucky to be being monitored but sometimes I wish I hadn’t been told. Ignorance is bliss.
Keep posting @Annw . I have found this a safe place to say how you really feel.
Look after yourself, you are not alone in this.
Alex x
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