Newly diagnosed CLL

We did look at this company and spoke with one of their representatives, who TBF, was incredibly helpful.

One big problem with what they offer though, their excess charges!
In the event anyone needs to make any form of claim, they are probably among the highest we’ve ever seen, if not indeed the highest.

We’re looking more closely at Staysure, who appear too offer good cover with far less significant excess charges in the event of a claim.

Thanks for the pointer anyway.


Interesting ! not something we were aware of will do more digging before we commit. Thanks


I would suggest having a look at Staysure. For us they got pretty close to our usual annual non-Chronic lymphocytic leukaemia (CLL) related cover. Their new quotation also included cover for my recent hip replacement, the source of my Chronic lymphocytic leukaemia (CLL) identification.

Worth having a look with them.


It’s certainly been a while since I last posted anything on this helpful and insightful website, however, a few thoughts about relatively recent suggestions regarding further vaccinations from the NHS.

I’ve been receiving offers of follow up vaccinations for shingles, pneumococcal infections and Covid during the last 6-9 months and to date, due to wanting to try to develop and enhance my own immune system protection, have avoided them.

I wanted to know if anyone else felt the same about these vaccination programmes and whether or not I might well be much better off taking advantage of these rather than potentially shooting myself in one or both feet by not doing so?

I’m genuinely not being pig-headed, just looking to improve my immunity as mush as possible naturally, instead of having it done for me…

I trust and hope that everyone on this website who has been diagnosed with any form of cancer, let alone the type I have like others here, in dear Chronic lymphocytic leukaemia (CLL) ‘land’, are doing as well as they can possibly be.

As for me, I’m still on watch and wait, to date, with no significant deterioration, other than the undoubted effect on my health ‘perceptions’ as actively now being demonstrated by this line of questioning!

Stay positive people. I’m still constantly bemused by what this is all about. In my world I remain actively unstoppable.

Watch this space!!!
Best regards




I have Chronic lymphocytic leukaemia (CLL) too. Have just had my eighth Covid vaccine. I just take anything that is offered as it helps boost immunity. Take care x


Hi @NobbyN , great to hear from you and hear your personal thoughts on vaccines.
My very personal thoughts, and I also have Chronic lymphocytic leukaemia (CLL) on watch and wait.
I take every vaccine offered as I worry if I do get flu, Shingles, Covid etc. with a weakened immune system that it might mean I get such conditions more seriously.
I find it takes me longer to build my batteries back up with goodness than to deplete my batteries and I do not want to get in that position, if I can help it.
But it is up to everyone to make their own decisions.
Look after yourself and please do keep posting


Hi @NobbyN.
I’m the same - I take everything that’s offered. I don’t seem to get any side effects so feel it’s the best thing for me. Was due my eighth a couple of weeks ago but ironically caught covid! I will go in a couple of weeks.
It’s a personal choice though. I have friends who feel differently and don’t have any.
Let us know what you decide :blush:


I also take every vaccine available just had my 8 th covid jab. I also have Chronic lymphocytic leukaemia (CLL) and for me it makes sense to boost immunity given the risks around a weakened immune system. Just my personal choice


Thanks for the replies and the advice offered.
I appreciate the sentiments and decided as I’m off on my motorcycle travels into Europe again in a couple of weeks, meeting up with a group of people from various other countries, I should think more about my potential exposure.

This resulted in my arranging to get another Covid jab, which I received today.

One very concerning reflection on my visit to and attendance at a pharmacy near Bridgwater was the conversation with the pharmacist. They were not made aware from the NHS as to the reason I was due a Covid jab, as no details were passed on. Also this particular pharmacy, like numerous others in the area, were becoming overwhelmed by the huge influx of people being pushed in their direction by the NHS under another of the unfathomable decisions made by this government.

I’m not by saying this, trying to start a political debate at all, although, get me started and…………!

To see the person in front of me actually looking like she was under huge pressure, made me very worried for that team and others across the country.

Cheers folks


Hi Kay. I have been on watch and wait for more than 14 years. At first my GP surgery was very good but then my main doctor left and I’ve had patchy support though recently I think they realised they had rather let me down. Gradually you have questions which get answered and become a little more knowledgeable but sometimes you need to press GP’s for blood tests etc. I had to fight to get my blood results from the receptionist. She may have thought I would freak at some of the abnormal figures but as a mathematician watching the values makes sense. I had to write to the practice manager and now there is a note on my records to confirm I can be given results. The hospital blood results don’t seem to come through always. I know there are people who have been on watch and wait for even longer than me so try not to panic.