Newly diagnosed with MGUS

Hi @LizK,

Welcome to the forum.
I think everyone with MGUS will have a different experience.
All my consultations with Haematology have been video or telephone. This was originally because of Covid and they have continued with this. This was originally every three months but has now stretched to four months. My levels of paraproteins have mostly been “too little to quantify” and therefore haematology have not done any CT or MRI scans or bone marrow biopsies. My blood tests have been relatively stable except in the last one the calcium levels slightly exceeded the upper limit. They proposed doing parathyroid hormine test in May, but fate has intervened and my GP did it this week because a Dexa Scan showed I have Osteoporosis. I have IgM kappa paraproteins. I think scans and bone marrow get done when the paraproteins get nearer the 10g/L or when one is very symptomatic-but I might be wrong on this. I also joined a research study in Oxford and had loads of blood tests and a CT scan. The CT was to check for enlarged lymph nodes and thankfully everything was ok.

Best wishes
Helen

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