Hi, I am recently diagnosed with Monoclonal gammopathy of unknown significance (MGUS). Paraprotein levels low but ratio kappa/lamda high. I am 69 years old so don’t have a clue how long I’ve had this condition as it was an incidental finding. I have an appointment for an MRI on 20 December and an appointment with the haematologist on 20 January. I am obviously concerned. I am well at the moment and not having frequent infections, but the high ratio level is most concerning. 142!
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Hi @ann03025 welcome to our forum and I am glad you have found us.
I am 74yrs old and I was diagnosed 20 yrs ago with another blood cancer.
I was also diagnosed at this time of the year, through tests for another condition, and felt in a surreal bubble with the world celebrating around me.
However this time will give you the opportunity to write down any symptoms you might have, fears, questions and practicalities for the 20 Jan.
I find that there is a lot of waiting about and not knowing.
You are now part of the Blood Cancer UK and our forim family so never alone and we will be around over the holiday period. The Blood Cancer UK support line is there for you on 0808 2080 888.
As you say you are well then carry on your life as usual and please do keep posting as I look forward to hearing more about you.
Be very lind to yourself
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Hi @ann03025
I understand that waiting for test results can be a stressful experience. It’s completely normal to feel anxious and uncertain during this time.
While I can’t provide specific medical advice, I encourage you to use reliable sources of information. Your doctor is the best source of information about your specific situation. You could also reach out to our nurses for additional support and information. They can provide guidance on managing your condition and answer any questions you may have.
https://forum.bloodcancer.org.uk/groups/bloodcanceruk_nurses
Blood cancer information and support by phone and email | Blood Cancer UK…_ga_1KYCBBV5MQMTczNDE2NDMzMy4xLjAuMTczNDE2NDMzMy42MC4wLjA.
Don’t hesitate to reach out to specialists support groups like MGUS - Myeloma UK
to connect with others who understand what you’re going through.
In the meantime, try to stay calm and focus on the things that bring you joy.
Thinking of you
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