Hi, I am recently diagnosed with Monoclonal gammopathy of unknown significance (MGUS). Paraprotein levels low but ratio kappa/lamda high. I am 69 years old so don’t have a clue how long I’ve had this condition as it was an incidental finding. I have an appointment for an MRI on 20 December and an appointment with the haematologist on 20 January. I am obviously concerned. I am well at the moment and not having frequent infections, but the high ratio level is most concerning. 142!
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Hi @ann03025 welcome to our forum and I am glad you have found us.
I am 74yrs old and I was diagnosed 20 yrs ago with another blood cancer.
I was also diagnosed at this time of the year, through tests for another condition, and felt in a surreal bubble with the world celebrating around me.
However this time will give you the opportunity to write down any symptoms you might have, fears, questions and practicalities for the 20 Jan.
I find that there is a lot of waiting about and not knowing.
You are now part of the Blood Cancer UK and our forim family so never alone and we will be around over the holiday period. The Blood Cancer UK support line is there for you on 0808 2080 888.
As you say you are well then carry on your life as usual and please do keep posting as I look forward to hearing more about you.
Be very lind to yourself
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Hi @ann03025
I understand that waiting for test results can be a stressful experience. It’s completely normal to feel anxious and uncertain during this time.
While I can’t provide specific medical advice, I encourage you to use reliable sources of information. Your doctor is the best source of information about your specific situation. You could also reach out to our nurses for additional support and information. They can provide guidance on managing your condition and answer any questions you may have.
https://forum.bloodcancer.org.uk/groups/bloodcanceruk_nurses
Blood cancer information and support by phone and email | Blood Cancer UK…_ga_1KYCBBV5MQMTczNDE2NDMzMy4xLjAuMTczNDE2NDMzMy42MC4wLjA.
Don’t hesitate to reach out to specialists support groups like MGUS - Myeloma UK
to connect with others who understand what you’re going through.
In the meantime, try to stay calm and focus on the things that bring you joy.
Thinking of you
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Thank you for replying. I am only anxious because I’ve read that a kappa/lamda ratio of 100 or more is a diagnosis of myeloma. As all my blood results were within normal ranges and my kidney function test was normal I didn’t think I needed to worry very much but I was shocked to read that my ratio of 142.91 was a diagnosis of blood cancer. My bone marrow biopsy results showed only 5% M proteins which my haematologist said was low. It’s like a ticking time bomb! I’m trying to enjoy life but with this thing hanging over me that isn’t quite as easy as it should be.
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Morning @ann03025
I have been thinking of you. Its so easy to find a lot of information online, but it can be overwhelming and sometimes confusing. It’s important to remember that everyone’s situation is unique, and online information may not always apply directly to your case.
My advice would be to focus on your communication with your medical team. They have the expertise to interpret your results and guide you through the best course of action.
I googled too much and in the end found it didn’t really help me just confused me.
Your haematologist is the expert: They have all the information about your specific case and can provide the most accurate assessment and guidance.
Don’t hesitate to ask your haematologist or the blood cancer UK nurses any questions you have. They are there to support you and help you understand your condition.
In the meantime, try to focus on what you can control, such as maintaining a healthy lifestyle and managing stress.
Remember, you’re not alone in this. The forum is always here to help you cope with your diagnosis and connect with others who understand what you’re going through.
Thinking of you.
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