So LLS replied already and acknowledged issues with the terrible website as well as the Myeloproliferative neoplasms (MPN) doctor not finishing her presentation. They say they’ll post any slides that the specialists share in 10 days on the LLS website and will email us when the slides are online. We’ll see 
2 Likes
Hi, @Duncan! That was a quick reply from them, wasn’t it? Very good! Let’s hope they will get all the presentations uploaded. The integrative oncology presenter said several times that she would be sharing the slides, so hopefully the Myeloproliferative neoplasms (MPN) presenter will as well and we shall finally see what we missed! Thank you again for writing to the LLS about it!
1 Like
Oh it’s my pleasure @JanetF! They shared presentation information from the in-person conference earlier this year, so I imagine they will again with this one too.
Glad I took photos of the slides on-screen before the Myeloproliferative neoplasms (MPN) doctor vanished though!
That sounds hopeful, then! 
I had forgotten that I had taken screenshots of the whole of the integrative oncology presentation, so I can share those if need be. I’ve just had a look at them and they are really clear. I took a few of the Polycythaemia vera (PV) presentation before it disappeared, too, but only a few. It was all so distracting, with the bad sound, the noise of her dog and so on, that it was hard to concentrate, so having the slides would be useful!
1 Like
Ha great minds @JanetF! I know what I can be like in lecture-type scenarios and take snaps to back up any notes. I love that you did too! 
1 Like
Great minds indeed, @Duncan! I wish all this tech had been around when I was a student!
1 Like
Right?! But I bet you still have great shorthand! Dying art, I reckon 
How did you know? I took voluntary redundancy in my mid-30s when the pharmaceutical company I was working for merged with another (they were eating one another up every five minutes back then) and the non-financial part of the package included a training element. I was going to go to law school to retrain as a barrister, so I reckoned that being able to take notes at super-speed would be really useful, so I used part of my training allowance to go to learn shorthand one day a week for a couple of months. It was great and so useful (and a day a week off work with a nice lunch paid for was great, too!). I only ever got ‘fluent’ enough in it to do a mixture of fast writing and shorthand, but I still use it now.
2 Likes
Big thanks to @Jonpd for sharing this elsewhere in the forum, it’s got loads of great factoids about Myeloproliferative neoplasms (MPN) and skin cancer risks from this Myeloproliferative neoplasms (MPN) specialist. The second half of the talk with a doctor of dermatology describing the best ways to look after our skin is also really helpful—lest we forget, skin is our largest organ!
1 Like