Hi @Loulou63 thanks for saying what your situation is.
It sounds a scary place to me having so many relatives with a blood cancer, is it for you?.
There is no problem with you joining our forum in the capacity as a family member/carer.
What we cannot do is give medical advice.
Look after yourself
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Good for you Dave! I’m so glad to hear that people are starting to listen to you. Thinking of you x
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@Dave_Hazell
Hi Dave
I to have not had a face to face appointment for well over a year. But my situation is stable and nothing like your situation. I have Chronic myelomonocytic leukaemia (CMML) and the first symptoms started on about January 2022.
It took 18 months to get a diagnosis. Unfortunately we live in dreadful times. The country is on its knees and the NHS in particular is overwhelmed. I understand why I only have telephone appointments as my leukemia is at the moment stable in fact I have said many times if it wasn’t for abnormal blood tests I would not have a clue I am ill. But your experience I find is outrageous. Hopefully you can get things sorted.
Very best wishes unclejack.
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