Hello, 2 years ago i have diagnosis Essential thrombocythemia (ET) - Essential thrombocythemia, and my platelets increased until 900, and this summer begining was 1300 , doctors suggested using interferon, but today i get blood test and platelets decreased until 900 again and they suggested postponing using interferon, can anyone told me somethink about this situacion? its normal what without treatment platelets can decrease? thank you
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Hi
I was told that platelets go up and down all the time. I’m hoping mine goes down and that will hopefully put off going on the meds next year
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Hi there @Marijus89
Welcome to our forum and thank your for your post.
We are sorry to hear about your diagnosis of Essential thrombocythemia (ET). We can imagine this was a huge shock for you.
As @Happy2019 has mentioned, platelets can go up and down often due to a variety of factors. This could include certain medications, inflammation or infections (even if you didn’t realise you had an infection at the time, this could still cause them to increase and then fall once this has passed.)
Could we ask has your treatment team discussed repeating your blood tests in the next few weeks or months?
The decision for treatment will be based on your individual diagnosis, blood tests and symptoms as well as age and fitness. It may be useful to discuss this with your team if you are concerned or have any queries about this, so that they know how you are feeling and can support you as best they can.
If you would like to talk anything through with one of our nurses, please get in touch on 0808 2080 888.
Take care.
Emma (support services nurse)
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So, I guess now what is normal? Now doctors before blood test was to give me to use interferon, but now back to using aspirin. Now i do test after 3 months from today.
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Hello @Marijus89
Thanks for your reply.
Your haematology team/ consultant will be able to tell you what range they would expect your platelets to be. They may have decided this change back to aspirin as your platelets have decreased, but imagine they will be monitoring this to see if different medication is required based on your platelet count in 3 month’s time.
It may be a good idea to speak with your haematologist or clinical nurse specialist about your treatment plan and what to expect going forward.
Take care & warm wishes,
Emma (support services nurse)
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