Have had PCV since 2007. i am having 3 monthly venesections and taking medication. I have got to the stage now where it is difficult to work without getting extreme fatigue so have had to give up now living off savings. Has anyone been succsessfull in claiming any sort of benifits. Age 64

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Hi @stevekinny a great big welcome to our forum and you ask a vitally important question.
I am copying you a link to The Blood Cancer UK website and if you would like to talk to someone the Blood Cancer UK support line is there for you on 0808 2080 888.
Blood cancer: money and work | Blood Cancer UK

I am also copying you a link to the Macmillan Caner support website Emotional, financial and physical help for people with cancer | Macmillan Cancer Support
Their phone number is 0808 808 00 00.
I hope both contacts can be of help to you.
Look after yourself and please let us know how you get on.