At my diagnosis of ET in September '20 I was told that it would be complicated if I were to get pregnant. At 36, that’s not what I wanted to hear, and of course nothing makes me want a child more than the possibility of not being able to have one! The consultant made it seem like it could be as simple as just additional monitoring, but as bad as life risking. I was referred to obstetrics for an appointment that my partner and I can both attend, with both an obstetrician, and a haematologist. Of course I’ve heard nothing and am on a list somewhere, who knows when we’ll get that appointment once restrictions lift. It was confirmed at my consultant appointment in January that I am on someone’s list for that conversation, perhaps I should be patient, but I turn 37 in a few weeks and it’s on my mind that I don’t have the luxury of being patient.
My questions to others are:
- have you been in the same situation and how did you cope?
- what are the risk factors, and is the risk to the baby, to me, or both?
- where can I find more information, are there private specialists I can talk to, and if so should I be looking for an obstetrician?