@ChrissyD Gosh! This is great news. And personally, so well timed. Really encouraging news. Thank you so much for sharing. We’ve actually come away today with the forms for being part of the Biobank too 
Here’s to Dr Wiseman & Dr Battas collaboration! xx
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Hi @Sisi . It all sounds like such a positive experience at Manchester. I can imagine your spreadsheets were impressive for Dan.
I’ll see if I get any commission from Dan - for increasing his huge workload! 
Virtual hugs most acceptable and gratefully received. 
And great that you’ve got your husband’s data going into the bio bank too as this is where a lot of useful info is going to come from.
It’s a bit tricky on this forum to include all past and present contributors with Chronic myelomonocytic leukaemia (CMML) so if anybody can add a few more @ usernames to this thread I’d be grateful as I can’t hold them all in my head!
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@ChrissyD It was so positive yes. And thats a good point, you definitely need to be on commission 
xx Oh also, I didn’t get the email either, to say you’d replied to my message, so maybe somethings amiss there today
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@logsie @CarlPeps @maggiemoon @Matilda @Murdoch @Bonnie16 @Ellen @SueKnysna @Pragmatic
Hi All
Just been back through Chronic myelomonocytic leukaemia (CMML) posts to draw your attention to the link about Chronic myelomonocytic leukaemia (CMML) research in my post today to various Chronic myelomonocytic leukaemia (CMML) folk.
Hope it’s encouraging for you.
Best wishes
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Hi Chrissy D @ChrissyD
Thanks very much for this information, it is much appreciated. I am keen to learn of any Chronic myelomonocytic leukaemia (CMML) information on research. Hope you are well.
Many thanks. Lyndam
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Hi @Sisi and @ChrissyD great to hear about your positive, long appointment with Dan Wiseman @Sisi
I am fine, thanks, but I am struggling energy wise at the moment.
Really look after yourselves
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@Lyndam @Erica @ChrissyD
Firstly Lyndham how are you? Hope you are ok., not heard much from you lately. Seems we Chronic myelomonocytic leukaemia (CMML) sufferers are raising a lot of interest. Chrissy D has been a force of nature really pushing the envelope for knowledge and research. I noticed a uptick on Chronic myelomonocytic leukaemia (CMML) diagnosis about a year ago and hopefully we can see a uptick in treatments. Had my second bone marrow biopsy today. Two doctors took turns in trying to get the samples out! Two separate sites selected. They had great difficulty in removing the solid bit. Took over in hour, but eventually success . Painless thankfully. Now the wait untill the 28/3/ for the results. Hopefully the full CT scan results will be available to.
Best wishes to Erica and all the Chronic myelomonocytic leukaemia (CMML) comrades, seems optimism is making a long overdue appearance Very best wishes to all Unclejack.
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Oh crikey @Unclejack. Your bone marrow biopsy today sounds a bit challenging but thank goodness you didn’t feel any pain from all the digging about! 
Not too long to wait for results 
Hope you are ok @Lyndam and hope your fatigue soon improves @Erica
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Rest up dear @Erica. Your energy will return. A big hug to you over the internet 
xxx
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Best wishes to you @Unclejack
Glad to hear that your bone marrow biopsy has now been done 
Take care x
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Oh @Unclejack why do I have such a vivid imagination of your doctors taking turns in trying to get the samples out of your bone marrow, you were very big and brave. Thanks goodness it was painless. Yes, now the wait.
Try and take it steady today.
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@Unclejack @Chrissy D. Thank you for asking how I am. I keep a close eye on the forum and look most days, but not the best at communicating on line. I had an appointment with my haematologist last month. My bloods were not so good, the liver function was very high, and was advised this was due to inflammation. Have to go for a scan next week of the spleen and gallbladder, then more bloods at the gp surgery early April, and back to hospital early June. The one strange thing was my platelets had gone up, which the haematologist said happens if you have inflammation. I’m in good spirits though and keeping busy. Sorry you are having problems unclejack and hope they quickly resolve.
Take care.
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@Lyndam
Hi Lyndham sounds like you are doing ok (in the circumstances) . The platelet info was very interesting and surprising. Didn’t realise that inflammation could push platelets higher. I know that inflammation can certainly be linked to cancer. I eat many foods that are anti inflammatory and contain many antioxidants.
I am still on watch and wait. Just passed three years since first symptoms and nearly two years since diagnosis. Platelets now seem to be in a falling trend (35 at last test) the rest seems to be reasonably stable. My cholesterol continues to fall and the consultant tells me to keep taking 40 mg ATORVASTATIN! Don’t know what will happen if it reaches zero! It is now 1.7! Often
on my blood test form it says PROBABLY Chronic myelomonocytic leukaemia (CMML) Is that a new variant or they are just not sure?
I wonder if others have had that experience?
All will be revealed on the 28th when the consultant sees me. Absolutely dreading the day. Although I feel quite well except for the night sweats I suspect something unpleasant is beginning to happen. Sorry to go on about my problems but Chronic myelomonocytic leukaemia (CMML) is so rare spreading info might be useful for others in a similar situation.
Perhaps Dr.Dan at the Christy hospital may browse our forum and find something of interest. HE IS CERTAINLY THE TOP DOC for Chronic myelomonocytic leukaemia (CMML).
All the very best unclejack.
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Hi @Unclejack I also take the Atorvastatin for my cholesterol.
You say that you are really dreading your appointment on the 28th as you suspect something unpleasant is beginning to happen.
Have you got someone to go with you?
Don’t forget to write down all your fears, questions and practicalities.
We and the Blood Cancer UK support line are there for you on 0808 2080 888.
All the very best and be very kind and look after yourself.
All the very best and …keep posting
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@Erica
Hi Erica, yes my wife always comes with me. She knows asking questions is not my strength.
Frankly I fear what the answers may be! Living in ignorance on these occasions can be preferable to knowing to much about the future. On the other hand I study everything I can on many websites. When I was young if my mum and dad were not around my two elder brothers would watch sci fi horror QUATERMASS on the BBC on a Saturday night. Before it started the presenter used to say this programme is not suitable for children or people of a nervous disposition. Of course after that warning all of us were glued to the programme. I usually took position behind the settee were I could hide from the monsters. Always slept with the light on after that. What I mean is I want to know what’s happening but equally, terrified of knowing the answer. To be honest my fallback position is always knowing the fact that Chrissy D and yourself have been living through this for many years so perhaps I may be able to as well. Hope you are bearing up.
Waiting for test results is very stressful.
Very best wishes unclejack.
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