My 18 months old son is Is suffering from refractory Acute myeloid leukaemia (AML) and Chemo therapy is not working anymore.
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Oh @AML I am so glad that you have found us and taken the time to post.
I just cannot imagine what you are going through at the moment, all those thoughts and emotions and those parental ones multiplying them as well.
What are his medical team actually saying now?
Please do try and look after yourself as well, I know it must be hard when your whole love and attention is with your son.
The Blood Cancer support line is there for you on 0808 2080 888.
We are also here to support you so please do keep posting what it is really like for you and what is happening.
Sending you lots of love xx
Dear @AML
Thank you for posting and I am so sorry to hear that your little boy is having such a terrible time. I can only imagine how hard this is for you as his Mum. May I ask whether you are being well supported by the hospital team? Does your little boy have a Clinical Nurse Specialist that you can talk to about next steps? Have they proposed some more treatment for your son?
We would be very happy to talk to you on the phone if that would be helpful Blood cancer information and support by phone and email | Blood Cancer UK. We also have a Clinical Trials Support Service | Blood Cancer UK who can also be a great resource.
Just in case it is useful we do have our information on Childhood acute myeloid leukaemia (AML) - what is it, symptoms and treatment | Blood Cancer UK here.
Please do keep in touch and take good care
Gemma
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