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Relapsed DLBC Lymphoma after 14 years

Hi @Kevan7 your post is so realistic and so difficult for medical people, even experts.
Look after yourself.
Has anyone else had similar experiences?

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And so many illnesses visually look the same and unless they where biopsied you couldn’t tell the difference between them.They say that dermatologists can tell ezecma and psoriasis apart but I have my doubts having being diagnosed with ezecma and then having them change the prognosis to psoriasis and bear in mind that wasn’t GP’s but specialists at a dermatology department at a world famous hospital!I often wonder if these illnesses are all just part of a spectrum and aren’t as different as people think but just different expressions of the same thing.Ezecma has recently been found to be an autoimmune ailment which they already knew psoriasis was.I know a fair bit about ezecma and psoriasis as I thought that I had them until about 2 years ago when it turned out to be neither,or perhaps further down the spectrum?, and was the rare skin lymphoma, Mycosis Fungoides.it is like the skin cancers, they look like this they say …but not always.Or they are found on parts of the body exposed to UV light but not always!I did read that people who have leukemia and lymphoma have a much greater chance of developing melanomas but it didn’t say if they followed the same MO of being in Sun exposed areas.

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It’s been a couple of weeks since I last posted. My B cell lymphoma has been diagnosed as stage 4 as it’s gone to the liver. That said, because it was spotted very early in the neck it has only spread to a handle of of lymph nodes including one above the cervix. I start my chemo regimen on Monday. I’m having family around this weekend because I won’t be able to see them whilst undergoing chemo. I am genuinely very stoic about the situation but it does ‘catch’ me at times and can leave me feeling temporarily overwhelmed.

I encourage anyone with a new diagnosis to do what they can to avoid that overwhelming feeling. Unless processed in little chunks the monster can feel too big, I’ve found

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Hi @LauraMM I think that is so natural for your situation to catch you at times and I know how overwhelming those feelings can be myself.
I am far more emotional since my diagnosis and those tears can start at any time.
Look after yourself and please do keep posting.

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