Six-month update is good

Watch and wait
1

Hi everyone :slightly_smiling_face: I hope you’re all doing well. I had my six-month checkup already, time sure does fly. Lymphocytes up slightly but I’m still on watch and wait. Lymph nodes fine still.

Doc also put me in touch with a support nurse and psychologist if I feel I need it, so we’ll see how that goes. Maybe because I mentioned wanting a career change but unfortunately finding it hard to make a decision with the cloud of uncertainty (even though at the moment, I’m all right, that feeling of uncertainty comes and goes). Not to be morbid, but that feeling of, if I start something new, will I be able to see it through. Difficult.

In other symptoms, since I last posted on here, I have started noticing random bruises, not weekly or even monthly but the sort of bruise where I don’t remember bumping that part of my body on anything. Mentioned it to doc and he noted down “ecchymosis”. This medical journey is like learning a new language, isn’t it! (Does anyone remember an old cartoon where the last question on the medical exam is "what’s the name of the hangey-downey thingy at the back of your throat? :smile:)

I hope you’re all doing well. :bouquet:

3 Likes
2

Hi @Calathea
Glad you are doing well,
It’s odd isn’t it the things you learn in this new facet of your life that is Chronic lymphocytic leukaemia (CLL) . I too have loads of random bruises in odd places but didn’t realise it’s called ecchymosis
So a new thing learned today -thanks :smiling_face:
Take care

3 Likes
3

Hi @calathea really good to hear from you with your positive news.
I also have Chronic lymphocytic leukaemia (CLL) and on watch and wait and it certainly did make me re-assess my life too.
I did have to give up a role because I could not stand for long periods of time without getting feint at that time.
However other opportunities did present themselves and I did take some of them.
When someone said to me actually all anyone in this world has is now, nobody knows what is round the corner, who could have foreseen Covid times.
Before my Chronic lymphocytic leukaemia (CLL) I went through life on auto pilot and I admit I was a bit materialistic, but now I realise, for me, the best things in life are often free, like family and friends, nature, music etc…
Live the life you love and love the life you live and please do keep posting

3 Likes
4

Thanks so much, the forum’s Old Faithful Erica :slight_smile: Yes - nature! That is exactly it. I have this obsessive thought now, which is to get out of the office and into nature, and hopefully I can find a career change that combines both of those things. Yet also allows me to nap :smile: :smile:

4 Likes
5

Wow, @Calathea that sounds idyllic

3 Likes