Hiello every one im 41 and just been told i have Small lymphocytic lymphoma (SLL) cancer ,watch and wait but been feeling so rubbish lately i am a carer and a cleaner so have a physical job and finding it hard to do a full week at work with out being so tired is this normal ? Im usally so active but just got no energy sleeping a lot more aching all over xx
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Hi @Liz1410 I am so glad that you have found us, welcome to our forum.
I wonder if you have a specialist nurse yet, if not the medical team that diagnosed you and tell them about the symptoms you have, their severity and impact on your life and see what they say.
It is always difficult with very generic symptoms as they can be attributed to different conditions.
I have another blood cancer and I am also on watch and wait (active monitoring) and one of my symptoms is fatigue.
I will copy you the Blood Cancer UK details on fatigue.
Active monitoring (watch and wait) | Blood Cancer UK
I have got to know myself and how I tick and I manage my fatigue on a daily basis.
Feeling rubbish really is rubbish
Please do let us know how you get on and be ever so kind and really look after yourself.
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Thanks so much i only got told in January but knew something been a miss for a while just getting my head around it all its so strange and scary how they just tell you give you the information and then say see you in three months times ,im trying to look after myself bit never have any time for me as its all work ans
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And no play as they say sorry my dog hit my armbefore i had finished lol 
hope your gettingnon ok with watch and wait do you just get use to it i feel like im a ticking time bomb if that makes sence my heads all over the place and i just dont know what to do xx
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Perhaps @Liz1410 if you are anything like me you are still in shock, it took me ages to get my head round it all.
It must be so hard for you as your are working so hard, perhaps just spend an extra few minutes with your dog or a few more moments in the bath/shower.
The emotional side really took it’s toll on me too, although I did not realise it at the time.
Also I could not explain to work what I did not understand myself.
I am given a long weird medical diagnosis and then told that I am not being treated and that I am going on watch and wait, wait for what and what about me feeling rubbish.
I felt the only person in the world and so alone.
You have made the first step by joining our forum family, please do keep posting as I look forward to hearing more about you
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Thanks so much i think i am its so strange when you dont understand it your self and your trying to tell your friends and family yes i have cancer but its watch and wait and it could be years before you have to have treatment and you do feel alone even when i have amazing family and friends thank you and i will post after my first check up take care xx
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Hi @Liz1410,
Welcome to our forum.
I am sorry to hear about your recent diagnosis of Small lymphocytic lymphoma (SLL) and how you’ve been feeling since your diagnosis, though it’s completely normal and understandable that you are feeling this way.
Sorry to hear you are feeling so tired. Fatigue is a common side effect of Small lymphocytic lymphoma (SLL) and one that many people experience. It sounds like you have two really physical and demanding jobs so it is not surprise you are feeling this way. Fatigue can effect you both mentally and physically. Its important to look after yourself and listen to your body. I have enclosed a link here to some of our information on fatigue which others have found helpful Blood Cancer UK fatigue Do keep your treating team updated on how you coping and feeling as it’s important they’re aware so they know how best to support you.
We would be very happy to talk things through with you Liz, if you would find this helpful. We have lots of support and information available for people newly diagnosed with blood cancer. Our free specialist nursing support line 0808 2080 888 is open until 7pm this evening.
Please let us know how you get on.
Take care
Fiona (support services nurse)
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