Hi there, My move to Glasgow will be completed in next 4 weeks. Obviously that means getting re-referred to a Glasgow Hospital. Is there anyway of finding out what Haematologists have experience of patients with TLGL. Dont think I could bear it if I get referred to someone that has no understanding of TLGL.
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Hi @Jbeaver12 great to hear that your move will be completed in the next 4 weeks.
Very interesting and good question.
It might be a good question for your existing medical team.
I will also copy your question to Blood Cancer UK support services @BloodCancerUK-SupportTeam In case they can assist.
I am also aware we are talking about a Scottish hospital.
Others might have ideas.
Please do let us know how you get on.
My team here are no use. My CNS just said get your GP in Scotland to refer you to a Haematologist.
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Hi there, we live in Scotland and even I’m not sure what your approach should. Depending on where you’ll be living, you’ll likely be under NHS Greater Glasgow and Clyde who will have their team of Haematologists. Once you’re on their books so to speak, i wonder if thats the tine to ask if any of the team have a specialist knowledge of your condition. The issue we have (in another NHS board close by) is that we’re under a team with no consultant specific to us ie we see/talk to whomever. Of course they have team meetings and are each aware of pertinent issues as they need to be. Im also not sure how you would go about accessing a consultant with the knowledge you want in a different geographical area due to funding constraints ie your board area responsible for you rather than a different board. Apologies for being zero use - i think i always thought if we moved that our consultant would refer us to another one where we were going to ensure continuity rather than a GP referral and the associated waiting times. Do let us know and all the best for the move
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Hi there, I’m a wee bit angry atm . Just moved back
to Glasgow last week and went to a new GP today . Obviously my records have not been transferred yet . He said it would take time to be referred to Haemetology in Glasgow and asked me to speak to my Haematologist in London to ask him to do a referral over to Glasgow as that would be quicker . Worse still he looked perplexed when i told him the name of the condition and even what a CNS is . I’ve just spoken to my CNS in London and he has said to get him to refer you to haematology in Glasgow . I hope this gets sorted out
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Firstly I am so glad that you have finally moved, @Jbeaver12 I hope you will be happy there.
I can understand you want to get a medical team around you that you feel confidence in.
When I changed GP’s in England, because we moved home, I checked the websites of local surgeries and read the GP’s specialisms and that helped me make a decisions.
I also checked the consultants specialisms and experience of haematology at my local hospital.
I hope your health care transition goes smoothly and you feel confident in your new medical team.
Please do keep posting how you are doing and be very kind to yourself