How are you doing now @muppet, I have been thinking of you.
Look after yourself
Hi @Erica, I’m OK, thank you for asking. Even with the anti-virals, it was quite rough. Thankfully, I’m over the worst of it now, but I’m still not feeling right - lots of cold-like symptoms and still a cough and shortness of breath, but I’m able to cope with it and go about everyday life mostly normally again.
I’m still testing positive on LFT tests even after 13 days, so it’s clearly still with me. Hopefully the remaining symptoms will clear as my body flushes the last of it out.
Thanks @Muppet for sharing your story. Broadly encouraging, though I sympathize strongly with your having to cope with continuing symptoms from COVID despite the antivirals.
I have not tested positive but am anxious to know the ropes for accessing antivirals if I do so, having recently been staying with relatives who tested positive during the visit.
I have read all I could find on the BCUK – very helpful – but was confused when I recently registered a negative LFT to find in the response email: “…If you’re eligible for COVID-19 treatments, you need to do 3 tests over 3 days.”. I don’t know if that means that the contact-back from CMDU and consideration for treatment would not occur until after three days of +ve test reports. If so that worries me, as my understanding is that minimising delay is critical. Does anyone know anything about this?
(I have advanced Chronic lymphocytic leukaemia (CLL) and am taking acalabrutinib, so believe my vulnerability would be high. I have had a little (in Jan) from my haematologist consultant saying that I “might” be eligible, but nothing from the NHS centrally.)
Hi @Ben welcome to our forum I will copy your post to @BloodCancerUK in case they can clarify the situation at all.
As you have not tested positive so far, although I realise your relatives have tested positive and you must be anxious, try and be kind to yourself, look after yourself.
Hi
I’m new to the forum so I hope I have posted this correctly, I would just like to share m recent experience after contracting COVID.
I was diagnosed with Chronic Myeloid Leukaemia 2 1/2 years ago and a I’m taking imatinib to manage it.
With cases of COVID rapidly reducing I recently decided to attend a family wedding, you’ve guessed it, 4 days later I tested positive. I reported my test result around 8pmand shortly afterwards I received a text reply stating i would be contacted within 24 hours. I was contacted at 10.00 am the following day by the COVID medicines delivery unit and they arranged for me to have a sotrovimab infusion at 3pm same day at a local hospital. The infusion took 30 minutes and I then had a precautionary 60 minute rest and was back home by 5.30 pm , so it was a very efficient service. It took 12 days for me to test negative but I only had very minor cold like symptoms.
Just to add I had received four covid vaccinations, two AZ and two Pfizer, I was due my 5th at the time I contracted Covid, I think I have wait 4 weeks now.
I hope you find this information useful and I would like to add that I have found Blood Cancer UK very supportive and useful .
Hi @paul1 a great welcome to our forum and what an experience to test Covid positive 4 days after attending a family wedding.
Thank you for sharing your very efficient Covid response.
So it took 12 days to test negative then.
How are you feeling now?
I look forward to hearing more about you, you are now part of our forum family.
Look after yourself
Good to hear from you. I’m not feeling to bad thank you just a bit of tiredness.
Re the family wedding, my daughter tested positive she was also at the wedding, my wife also contracted covid but she probably caught it from me as she tested positive the day after I cleared.