I was diagnosed with MGUS 5 or so years ago and was totally in the dark. Scared wasn’t the word! And I couldn’t seem to find anything about it. It was found after a hospital visit for nerve damage requiring a blood test. I had a full body x-ray and now have an annual blood test.
The MGUS gang don’t seem to fit anywhere. We are not in the ‘don’t have cancer group’ and not in the ‘do have cancer’ group. Anyone who has the condition still need support. So I finally think I have found my gang. I really hope so.
My last blood test was showing irregular results and I had to go for another blood test and wait for the results. Well, I was petrified, expecting the worst. Although my family are really caring and always there for me, saying “it will be fine” wasn’t helping me at all. What if it wasn’t fine? I don’t know what I wanted them to say but that wasn’t it. As it happened they were right, nothing had changed and the results were great but I still felt really alone at that time. Perhaps it’s just me……
Anyway, that time is fast approaching for the yearly mental torture test so I expect to be not sleeping again, worried what might be. Just thought I’d share that.