After a few days of battling, I surrendered to day and rang the Chemo helpline. Temperature ranging from 35.4 - 38.9 and couldn’t regulate it. Problem is the side effects mimic the disease. I thought I could ride the storm… no is the answer. When we feel good we feel guilty. When we feel bad, we feel real bad.
Oh @Gary, we really are on a rollercoaster or storm of oscillating thoughts, feelings, symptoms and practicalities.
Let’s hope your overnight stay in Cheltenham gets on top of it.
Please let us know how you get on and take lots of care of yourself.
Thanks for all the replies and get well wishes. I have been let home now. They’ve suspended my treatment for now, and I have an appointment with the Oncologist Wednesday, bloods Tuesday. I already have an appointment with Professor Collin next week and my Pneumonia Jab. All going on!
My blood tests at the hospital came back with a CRP of 176!
The hospital, porters DR’s and nurses were excellent
I’ve been thinking about you @Gary and I am so glad that you have been let home and there seems to be a plan for you.
Let us know how you are getting on and look after and be kind to yourself.
Hello @Erica I certainly will. I’m not out of the woods yet, but it certainly brings home how vulnerable we are. The nurse said don’t hesitate to call the helpline next time.
Oh @Gary you have certainly got permission from your nurse to ring their helpline ‘if’ there is a next time.
It takes time to get out of the woods and yes, we are vulnerable so look after and be very kind to yourself
Hi @Gary. I’m so pleased that you are home and that you were well looked after by the doctors and nurses. Now time to rest and enjoy being back in your own bed. Please keep us updated on how you are doing and how you get on next week
Not out of the woods yet! Thankfully I finish the antibiotics today (nausea etc) More blood tests next week as the levels in my liver are still high. Chemo is on hold until they get to the bottom of this. The Oncologist seems to think it’s a combination of side effects and an infection
How frustrating for you, @Gary. I hope by the time you read this, that your oncologist has got to the bottom of the problem and that you will soon be back on your treatment.