After a few days of battling, I surrendered to day and rang the Chemo helpline. Temperature ranging from 35.4 - 38.9 and couldn’t regulate it. Problem is the side effects mimic the disease. I thought I could ride the storm… no is the answer. When we feel good we feel guilty. When we feel bad, we feel real bad.
Overnight stay in Cheltenham.
Oh @Gary, we really are on a rollercoaster or storm of oscillating thoughts, feelings, symptoms and practicalities.
Let’s hope your overnight stay in Cheltenham gets on top of it.
Please let us know how you get on and take lots of care of yourself.
Things sound really tough at the moment. I’m glad they are keeping an eye on you. Please let us know how you are doing tomorrow x
Thinking of you @Gary and hope your temperature will come back down again soon.
I have spent quite a few days in Cheltenham in the past and well looked after
Get well soon Gary
Thinking of you @2DB, please keep updating us with how you are.
Look after yourself
Thanks for all the replies and get well wishes. I have been let home now. They’ve suspended my treatment for now, and I have an appointment with the Oncologist Wednesday, bloods Tuesday. I already have an appointment with Professor Collin next week and my Pneumonia Jab. All going on!
My blood tests at the hospital came back with a CRP of 176!
The hospital, porters DR’s and nurses were excellent
The battle continues
I’ve been thinking about you @Gary and I am so glad that you have been let home and there seems to be a plan for you.
Let us know how you are getting on and look after and be kind to yourself.
Hello @Erica I certainly will. I’m not out of the woods yet, but it certainly brings home how vulnerable we are. The nurse said don’t hesitate to call the helpline next time.
Oh @Gary you have certainly got permission from your nurse to ring their helpline ‘if’ there is a next time.
It takes time to get out of the woods and yes, we are vulnerable so look after and be very kind to yourself
I’m doing good
Cheltenham was back 2917/2018
Hi @Gary. I’m so pleased that you are home and that you were well looked after by the doctors and nurses. Now time to rest and enjoy being back in your own bed. Please keep us updated on how you are doing and how you get on next week
I’m so pleased to hear that you’re back home now @Gary and hope your forthcoming appointments will go well.
Glad you are home hope things continue to improve.
Not out of the woods yet! Thankfully I finish the antibiotics today (nausea etc) More blood tests next week as the levels in my liver are still high. Chemo is on hold until they get to the bottom of this. The Oncologist seems to think it’s a combination of side effects and an infection
uh @Gary you are not out of the woods yet, are you, really take care and look after yourself
Oh bless you hope you get better soon
I’m hoping you are on your way out of the woods. Please take care and look after yourself
Hi @Gary, thank you for updating us. We do hope you are on the mend soon- it sounds as though it’s been a difficult journey for you. We are here for you if we can be of any support (Blood cancer information and support by phone and email | Blood Cancer UK).
How frustrating for you, @Gary. I hope by the time you read this, that your oncologist has got to the bottom of the problem and that you will soon be back on your treatment.