US survey on MPN

Although it’s from US, I thought it was worth sharing as I could relate to the concerns people had. In particular, I remember being diagnosed and a friend told me it was ‘the best cancer to get’. I’m not sure it always feels that way to live with it. These forums are so important, as talking to others with similar issues helps me deal with my worries more effectively.

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Yes, @Lou, this article was definitely worth sharing and your post says it all, these forums are so important, as talking to others with similar issues helps me deal with my worries more effectively as well. Stay safe and keep posting!!

Thanks @Erica. I wonder if blood cancer sufferers feel like those with lung cancer. You look normal so people assume you’re ok. Roy Castle Lung Cancer Foundation did a campaign on something similar. We need to help people understand how ill we feel, how our mental health is impacted and what support we need.

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@Lou I hope you are doing okay? and thank you so much for sharing, as you rightly say, so long as people keep in mind this is from the US- there’s no reason why many aspects of it can be very helpful to people. Thank you again!

And look forward to hearing peoples’ thoughts :slight_smile:

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