A warm welcome to the forum @Vitaspin, I am so sorry to hear that you and your husband felt that the consultant could have been more helpful. May I ask how you’re both doing at the moment?
In case it’s helpful at all we have a factsheet on WM which you can find here https://media.bloodcancer.org.uk/documents/Waldenstrom_macroglobulinaemia_WM.pdf
Also, our Living Well pages on our website has some information around managing fatigue, which you and your husband might find helpful - https://bloodcancer.org.uk/support-for-you/living-well/.
You might also find some tips on this conversation re fatigue - Fatigue - what has helped you manage? (Facebook post)
I wonder if anyone on here as any tips around talking to their consultants and what they found has worked for them to ensure they get the most out of their appointments and conversations?
As Erica said above, I’d encourage you and your husband to find out who his clinical nurse specialist/key worker is, if you haven’t already, as they are really good points of contacts to have and they’re available to contact in between appointments to talk things through.
Really glad you found this forum and I hope you find it a welcoming and supportive place @Vitaspin. Remember our support line is only a phone call away too on 0808 2080 888 if you ever want to talk things through with us. It’s free and confidential.