I was now diagnosed with Monoclonal gammopathy of unknown significance (MGUS) 18 months ago. My recent blood tests were not good and I have anaemia. Now my consultant has arranged for me to have a bone marrow biopsy this week. Is it normal to be very apprehensive about this in case the result is bad news?
How have others dealt with this?
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Welcome to the forum @DC55
Thank you for sharing what you’re going through—it’s completely understandable to feel anxious ahead of your bone marrow biopsy. It is always a worry when have any new tests, and the uncertainty around what the results might show can be really tough.
You’re not alone in feeling this way. Many people with Monoclonal gammopathy of unknown significance (MGUS) have shared similar worries, especially when symptoms change or new tests are ordered. Blood Cancer UK has a helpful page that explains what to expect from the diagnosis and monitoring process, including when a bone marrow biopsy might be recommended: MGUS diagnosis and monitoring – Blood Cancer UK
I hope everything goes as smoothly as possible for you this week. Do let us know how you get on.
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I too was in the same situation 2 months ago but the actual biopsy itself was not as bad as I thought. The only thing to be aware of is the waiting time (upto 5 weeks) waiting for the results. Wishing you all the best, as others will ssy, you are in good hands.
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The biopsies were not a pleasant experience but at least they are done! Now have to wait 4-5 weeks apparently for the results which seems a long time.
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Hi @DC55 yes, I have also recently had to wait 5-6 weeks for some unrelated biopsy results.
For me waiting and not knowing is a worrying time, but I try to divert my mind and do other things.
Just letting my mind think is never a positive experience.
Please do let us know how you get on and really look after yourself
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Glad they are completed…these will give you a clear understanding. Just to update you on my situatioon, my results showed I’m at early stage on Myeloma but no treatment needed, just have boods again in 2 months. I’m just getting used to this news, have ups & downs - hope you have a great family behind you, its important. I’m also aiming to join a Face To Face group in 2 weeks as I think this would help me, talking to people who have gone through the same. Please keep in touch & happy to share/talk anytime.
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