I was told last Friday by my Oncologist that due to my excellent blood test results I would be able to start the transplant after my 4th cycle of chemo. However one of the transplant nurses informed me that only stem cell collection was done after the 4th cycle but I would need to continue with the 5th and 6th cycle before the stem cells are returned. When I queried this with the oncologist who then phoned to apologise for the mix messages and said the regional licenced procedure was collection at 4th cycle and transplant after 6th cycle. I am obviously disappointed not to start the process at the 4th cycle but also I am wondering about my oncologist knowledge. Should I ask for a second opinion and is this procedure common in other hospitals?
Hi @Myelomapat I cannot answer your medical questions but this is obviously concerning you.
It does not answer your questions but others might be able to share their personal experiences.
Yes, a second opinion is an option to you.
Look after yourself and that is the most important thing and please keep posting
Hi @Myelomapat
That’s great your bloods are looking so good after I’m guessing cycle3
There is generally a few weeks between harvest and transplant as there are pre transplant tests to be done
I was diagnosed with myeloma in 2017
It’s been a while since I harvested my stem cells (2017)
I had 2 cycles of VDT I was not responding to this then had 3 cycles of ESHAP had a break of 8 weeks then harvested stem cells
I had my transplant around 4 weeks later
I will link a myeloma uk download that may help you with any questions
Hi @Myelomapat.
It tough when there is a miscommunication like this, especially at a time when you need to have absolute trust in your team.
As @Erica had said, you have the right to a second opinion.
Do you have the relationship with your team whereby you could discuss how this is made you feel? Have you had the same oncologist for a while?
Oh @Bitsy and @Myelomapat I think it is so natural to worry, especially about all the unknowns.
Just look after and be very kind to yourselves
Hi @Bitsy. You describe how so many of us feel/have felt. The constant worry can be mentally exhausting can’t it! So glad I have people on here that understand
Thanks for your thoughts. I have had the same guy since the begining. I would have thought he would know the procedure if he had been workign there soem time.
Hi Bitsy that is useful feedback thanks.