Worried about a leukaemia like rash on my son

Worried you might have a blood cancer?
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My son has had a recurring leukaemia like rash that has appeared then disappeared over the course of 2 months, he is typically ok in himself but has occasionally seemed a little tired compared to his usual self, he has nosebleeds very occasionally and does always have bruises on his legs, but he has just turned 5 and is a little clumsy. i’m going to push for some testing as nothing will settle my mind other than that but is there anything thats really similar that this could be? I feel sick to my tummy with worry and cannot sleep. Any advice to help settle my racing mind kindly accepted too

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The best thing you can do for your peace of mind right now is to speak with a specialist nurse. They can talk through your concerns in detail.

• Phone: 0808 2080 888

• Email: support@bloodcancer.org.uk

• Support Page: Blood Cancer UK | How we can help

I would make an appointment with your GP, I always find it helpful to write a quick checklist to help me get the answers I need and to not forget anything:

• Show Photos: Since the rash comes and goes, show the doctor any photos you’ve taken.

• Be Direct: It is perfectly okay to tell your GP, “I am very worried about blood cancer and I would like some investigations to rule it out.”

Trust your instincts as a parent if you are worried.
Do let us know how you get on.

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Hello @becky.c

Thank you for taking time to send in your post

I can see @Jules has left you a very kind and informative response and i echo her words

I hope everything goes okay

Take care

Kind regards

Mike

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Hi @becky.c welcome to the forum, though I’m sorry that it’s your worries about your little one that brought you here.

I just wanted to add to what @Jules and @GenesisDevice have said (thank you both!), because as a Mum of a little one myself, I know the waiting and not-knowing can feel incredibly difficult, and “trust your instincts” is easier said than done at 3am when your mind is racing.

You’re right to push for testing, and it’s worth knowing that there’s a relatively new NHS initiative called Jess’s Rule, which gives patients - and parents - the right to request a face-to-face GP appointment and a second opinion if they’ve presented with the same or worsening symptoms three or more times. It was designed for situations like this, where something keeps coming back and you need someone to take it seriously. You can mention it by name when you speak to your GP.

Please do keep us posted,

Ceri - Blood Cancer UK Support Services

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