Hi my name is Danny last year I had a tumour removed from my bowel and half my bowel removed also I was given the all clear no chemo or radio therapy I thought great that’s less to worry about.
So this year since before Christmas I have been ill and for the last 6 -7 weeks just sleeping all the time I’m always cold but I’m sweating more than I do normally but yet I’m cold. I have had loads of blood tests done and apart from my white cell count and Lymphocyte count and Eosinophil count and Basophil count been slightly high I have had a result of BENCE JONES been found in my urine I find this quite concerning along with all the other things I have going on health wise at the moment also I have like skin legions on my face that came out of nowhere no explanation no one seams to know what they are l.
But my gp say my test results are normal but I was looking and the Bence jones protine shuld not be there and states there is something wrong I’m just stressed and don’t know what to think
Sorry for the long rant I just need to write it down before I jump in front of a bus or something stupid
Hi @D13urg welcome to our forum and you say that you do not know what to think.
What would give you more peace of mind?
Perhaps you might ask for a second opinion via your GP or, at your cost unless you have any insurance cover, privately.
Personally I think we are very individual complex beings which makes any diagnosis very complicated.
All tests are to rule conditions in or out.
The Blood Cancer UK support line is also there for you on 0808 2080 888
You are now part of our forum family so please do let us know how you get on and really look after yourself, not knowing and waiting are not nice feelings
I have sought a second opinion I just don’t seam to be getting anywhere and the stress of it all is starting to take its toll on me.
I’m sorry if this is not the right place thanks for the information
Dear @D13urg,
Welcome to our forum. I am sorry you are having a difficult time. It sounds like you went through such a lot last year also. Just a thought have you spoken with the team who managed your tumour/surgery? I wonder whether it would be an idea to let them know your symptoms/results to see if they have any thoughts.
Did you have further blood tests once the bence jones was detected? You could go back to the GP and ask if a referral to a Haematologist would be appropriate.
Can I ask if the skin lesions have been looked at by dermatology?
Sorry for the many questions, if you wanted to talk things through over the phone you can call us on 0808 2080 888.
Best Wishes,
Heidi J (Support Services Nurse)